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Headache and Migraine Group: Let’s connect
Headache & Migraine | Last Active: May 17 11:04pm | Replies (169)Comment receiving replies
I’ve had chronic migraines for decades. I finally found a neurologist who worked to find the right combination of treatments for me (QULIPTA, Ubrelvy, and Botox). Botox greatly improved my quality of life and helped so much with my migraines and my latest diagnosis, cervical dystonia. I had a change in heath insurance in 2025 and I no longer qualified for the Botox Savings Program. I’ve been off Botox for just over a year and have lost 2 jobs due to migraine absences. I still struggle with feelings of guilt or shame, as if my migraines are my fault. New year, new insurance. Trying again for Botox approval to see if I qualify for the savings program so I can afford treatment. Chronic migraines have completely upended my life.
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@bangerang512 sorry for your situation. I was placed on disability due to stage IV cancer and also have chronic migraine with pain level 8-10 24/7. There’s no way I could hold a job as my migraine affects my entire life.
Have you applied for disability? You should talk to your care team about disability!
I’ve been receiving Botox for a few years now and it’s no longer helping.
I can’t take Triptans because I’m over 60(63).
Nurtec and others are $400 copay so those are out of the question for me.
I wish you the best!
MOJO
@bangerang512 It is criminal that these vital treatments are so unaffordable. Do you by chance have access to Kaiser Permanente health insurance? I live in California, Have Kaiser and am on Medicare and my treatments cost $15! I wish you the best of luck!!!
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@bangerang512 So sorry your pain has caused you to lose your job. At one time I thought it could be my fault but no longer I believe mine is bad posture, weak muscles, I am doing all that I can do, but my Mom suffered for years when I was young she would get so sick. She outgrew them and mine started twenty years ago. With the help of my Pain Dr. Nerve Block pain every few months, monthly visit to Clincial Massage Therapy (the very best thing). a daily exercise program I developed myself following Dr. Jon Saunders, some days good, other days bad, and some days awful, but don't give up we know how you suffer.