J tube removal issues: Anyone have a fistula?

Posted by bluedog35 @bluedog35, Sep 22, 2025

I recently had a j tube placed and it became dislodged and was just causing all kinds of issues so the doctor thought it was best to remove it and use TPN instead. Before the removal, the incision that was used to place the j tube opened up and was having a lot of drainage which is what lead to the removal. The incision still has not closed and it's been 10 days and every time I drink anything (on liquids only) the drainage increases. Has anyone had a similar issue? how long did it take to close up? The drainage is so bad I have to wear an ostomy bag.

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@goldenshadow it was in the intestines. I just saw wound care today and apparently there is a fistula that formed which is allowing drainage from the intestines to exit through the wound. Trying some new bandages and thoroughly cleaned it out, so hoping that will allow it to close up and heal.

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@bluedog35

Mine kept healing from the top down then after a couple of days would reopen after it started to back up into my abdomen. The timeframe keeps getting shorter, it has done this 3 times, which is why surgery is my only option. I have been going to wound care for 7 months and they have been great but its just not healing.

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My 30 fr j tube got to big and started to embed in my stomach wall. I have it replaced 3 times in a 10 day period only for the hospital in Rockford to tell me I was out of their helping. I had tube removed and rushed to Wisconsin where they help. My j tube sight is now draining so bad. I had to go to wound care yesterday to help put the ostomy bag on cause I can't get it on myself. My skin is so red burning irritated. I just want this to close. I'm trying to find someone that's been thru the same and I found your post. I need hope and some answers. How long did it take for yours to close. I just got out 4 days ago. This is a lot to take on. They want it to close completely so they can reinsert a smaller one once healed. I have a ng tube right now to keep my nutrition up. They done want to suture it because they want to reuse it. But I just wanted to know how long did it take for yours to close? Thank you. And im hoping your health is all well.

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So I had my j tube for 3 months after my esophagus surgery only used it a couple of days a week. I could eat again. Just used it to put more weight on. So when they took my tube out it was just and easy pull and done no sutures. Doctor said I was good to go. Healed with no complications. I never had any other feeding tubes. I am doing well thank you for asking. Hope this helps sorry couldn’t help more. There are other patients on here that could answer your question more thoroughly. Wishing you well Scott.

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