I’m coming at this from someone who lives with epilepsy and doesn’t have epilepsy. Knowledge is power in my opinion. The unknown is scary. That said, I will never get used to my son’s seizures. He had a sudden onset right before his last year of high school and had 18 tonic clonic seizures in about 5 mos time before the right combo of drugs got on board.
I won’t lie, it’s scary to watch a loved one fall to the ground and shake about and make scary noises. Thankfully he has been seizure free for 2 years and I’ve settled a bit but I still get a bit of a panic if I hear an odd noise.
I can’t imagine having to be the one who is actually living with this disease, but I love the info on the phone case, I bet you could get a case made with the note. My son wears a medic alert bracelet and, quite frankly, I’ve told him he doesn’t have to tell everyone he meets, if he doesn’t want to.

I’m sorry if people have lost friends over this, I can only imagine it was out of fear, but it still stinks!

Tracey