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71 year old female diagnosed 6 month ago with PV
Blood Cancers & Disorders | Last Active: Mar 1 8:31am | Replies (24)Comment receiving replies
@beebo I am 70 year old female and I was diagnosed in Dec 2025. I've been on HU 4x week since end of Dec and have been taking weekly blood tests before my next appointment with Hemo on 2/11/26. My question to you is when you first started taking the HU did your numbers go up an down. My platelets have really dropped down to 336, but my Hcb 15.5 / 16 and Hematocrit goes one or two points up and down every week. 47, 49. Did that happen to you and why to they fluctuate every week, if you know.
Replies to "@beebo I am 70 year old female and I was diagnosed in Dec 2025. I've been..."
@lindakay55 Yes! My doctor likened it to the “Whack a Mole “ game at the State Fair. Knock one number down and another one goes up. His primary focus was on Platelet Count. That was the most volatile . I ranged from low 200’s to mid 800’s. Finally got it stabilized in the mid 300 range. The other numbers also seem to have stayed pretty constant since then. I’ve continued on the same dosage since. (500mg 4x/week).
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@lindakay55 I have ben on HU since September and at that time my hematocrit was 52. By November it was 44. Beginning of December it was45.1 then end of December it was 39.3. At my appointment just yesterday it was 40.5. It's crazy. Maybe dehydration plays a part, I'm not sure. All my other labs are within normal limits. My doctor says things are good and not to worry. Easier said than done.