Connect
← Return to 100 day stay in Rochester, MN @ Mayo
Discussion
100 day stay in Rochester, MN @ Mayo
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Apr 29 9:25am | Replies (20)Comment receiving replies
Hello! Sorry for the delay in replying to your kind and helpful messages. We did two rounds of consolidation and got our daughter off to the dorms to finish her college experience and it's been a little overwhelming!
Our next visit to Mayo is February 17th and just got word from transplant team that my husband has multiple 10/10 matches that they narrowed down to the top donors and have two on standby. So it's just a matter of getting my husband to the green light and we will be starting! That's an overwhelming message to get!! But great!
We are still considering our lodging options as the 2 bedroom at Residence Inn is looking like $25k for the 100 days and that has started feeling like a lot. Just weighing our convenience with finances and trying to decide if a little hassle might be worth paying less.
I'm still not sure what the process is for a middle of the night emergency and that's what's making me nervous right now. (I have clinical OCD on top of all this process which is managed and medicated but some things are slipping through hahaha) No one may have a good answer here but if a person is staying say at The Park like @dwolden mentioned, and they start a fever at midnight and need to "go in" what does that look like?? Where would someone park/drop the patient off? Is there an admit door at Methodist? Or do they go to St Mary's and get transferred? I'm completely overthinking allll of that but it's the piece that I can't picture.
I'm positive I will have more questions as we proceed. Thank you all for the guidance so far.
Replies to "Hello! Sorry for the delay in replying to your kind and helpful messages. We did two..."
@wifeatbedside plus you will get so thoroughly educated at the transplant center. They have the answers to most everything. I do have the direct experience from The Park. If you’d like to talk on the phone sometime maybe Lori could help us figure out how to share numbers
Connect
@wifeatbedside anything transplant related (fever, chills, etc) you go to the Methodist hospital 9-4. And you call first. They will be ready. We had to do it once at night. I dropped him off at the Charlton entrance and the door is staffed 24-7. I have anxiety issues now myself so I honestly can’t recall if they brought him up or I parked in the Graham Ramp and ran back (and I do mean ran) while he waited inside in a wheelchair. I do know everyone was very helpful and kind.
There is an elevator at The Park and if he wasn’t able to walk to the car I ran to get it and he stayed near the elevator. Again it only happened a couple times.
The apartment was furnished but you have to have bedding, towels, dishes, most utensils etc.
We did have the misfortune of a heart incident while we were in Rochester that saw us at St. Mary’s ER. Which is also thankfully close to The Park.