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← Return to Off Prednisone but still feeling new type of pain
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Off Prednisone but still feeling new type of pain
Polymyalgia Rheumatica (PMR) | Last Active: Feb 9 8:26am | Replies (115)Comment receiving replies
@dadcue since going off prednisone 9 months ago I have since stopped taking LDN and hydroxychloroquine. Both were Prednisone sparing drugs. I decided to bite the bullet and see what happens.
I have virtually no pain and believe I should have done this years ago.
I am stronger now and able to work out at the gym almost as well as before PMR. The prednisone had weakened my muscles which was making recovery harder. The pain I was often feeling was actually my muscles screaming because they were so weak
These drugs make us too dependent
I am so happy I have my life back. I’m celebrating by planning lots of travel which I had stopped because I never felt healthy enough to leave home on a trip.
The money I am saving by not going to doctors and paying for meds and supplements will help make this possible too.
Replies to "@dadcue since going off prednisone 9 months ago I have since stopped taking LDN and hydroxychloroquine...."
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@abbeyc
Are you still receiving treatment or did you just stop taking your medications?
I firmly believe the secondary adrenal insufficiency that Prednisone caused was more of a problem than PMR ever was. You are right about being dependent on Prednisone after adrenal suppression occurs. Secondary adrenal insufficiency caused by long-term prednisone use is recognized as a significant, often overlooked complication that can be harder to manage than the original PMR.