My story is very similar to yours.

45yo 0-10 resting gradient 170+ with exercise. 14mm septal thickness. I’m mildly overweight by 10 lbs which was gained after starting verapamil.

My provider put a hold on Camzyos start because she ran my case by surgeons. With the mild hypertrophy, she wants to rule out my obstruction being primarily valve related. I have a TEE scheduled in a few weeks. If that shows up okay for the valve, I’ll be starting Camzyos.

However we’ve been exploring both paths of surgery vs Camzyos. I’m young, fairly fit (exercise 5x a week), and a good surgical candidate I’ve been told.

With my age and having that on my side, I’m thinking of giving the Camzyos a try while I prepare myself for the surgical route or other therapies that could evolve in the next few years. If the Camzyos isn’t successful for me, I can feel comfort that I gave it a go before surgery. The other side of my brain though says just get the surgery and move on.

My surgical concern is the impact on my family (young kids) and impact on my business (self-employees). No family local to us and it will take planning to get things in a place that feels coordinated for success. Additionally, if I want surgery at a COE, I need to change health insurance (currently Kaiser Permanente), and with the state of healthcare and my very attentive team at Kaiser, it adds another big concern.

You’re right that sometimes just voicing this stuff helps, and hearing from others with similar concerns/issues. Wishing you well on your health and whatever path you take!