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Off Prednisone but still feeling new type of pain
Polymyalgia Rheumatica (PMR) | Last Active: Feb 9 8:26am | Replies (115)Comment receiving replies
"I would not have done anything differently, but there is a price to be paid."
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That pretty much sums it up for me too. The pain had a way of making me take prednisone. Now I do a monthly infusion of Actemra. With any luck, I won't have to take Prednisone again.
I worry that there might be a medical price to be paid for being on Actemra too. I'm fortunate that the dollar cost isn't that much for me.
Replies to "@54pontiac "I would not have done anything differently, but there is a price to be paid."..."
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@dadcue since going off prednisone 9 months ago I have since stopped taking LDN and hydroxychloroquine. Both were Prednisone sparing drugs. I decided to bite the bullet and see what happens.
I have virtually no pain and believe I should have done this years ago.
I am stronger now and able to work out at the gym almost as well as before PMR. The prednisone had weakened my muscles which was making recovery harder. The pain I was often feeling was actually my muscles screaming because they were so weak
These drugs make us too dependent
I am so happy I have my life back. I’m celebrating by planning lots of travel which I had stopped because I never felt healthy enough to leave home on a trip.
The money I am saving by not going to doctors and paying for meds and supplements will help make this possible too.