Hey @fastar1, welcome to Mayo Clinic Connect.
I am so glad you found this site and have been encouraged by what you have read.
You are on the right track with the testing you've done and the tests coming up.
This information will allow your provider to be able to make a plan with you on the best course of action for your HCM.
I read that you are very close to a Mayo Clinic.
May I ask if it is Rochester?
They are the experts in Hypertrophic Cardiomyopathy, and Dr. Ommen is a world leading physician in the science and education regarding this condition. He sets the protocol for others to follow.
If you have considered a second opinion, what a great place for you to be! I had to travel across the country to get there, but I would do it again in a heart beat (pun).
No two of us are alike, so each person will have different options available for the treatment of HCM. And since we are all different, we will process that information differently too.
You get to decide what is best for you, physically and emotionally. HCM is tough to handle when you are first diagnosed. But it is good to know what you have and be able to learn as much as you can so you can help decide your treatment too.
Here is a link to Mayo Clinic and Hypertrophic Cardiomyopathy:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
In case you have not read up on what you have, take some time and learn as much as you can so you can be your own best advocate. Not all cardiologist are specialized in the progression or treatment of HCM to it's unfriendly obstructive component HOCM.
It can happen slowly, over much time...or progress rather quickly. You know you better than anyone, so pay attention to your symptoms and keep good notes.
I hope you come back and share your MRI and other test results with our little group.
When do you have the rest of these tests scheduled?
@karukgirl Thank you so much for the warm welcome. I have read the information on HCM on the Mayo Clinic website. And yes, I will share my test results as soon as I get them. My tests are scheduled through February and March with the last one - Cardiac MRI - in April. I will ask my cardiologist if he specializes in treating HCM. I was referencing the Massachusetts General Hospital because they have affiliations with the Mayo Clinic and I live close to MGH. That said, if I need to fly to Rochesta MN - I will. I am very encouraged by you all - thank you!