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@fastar1 I have found great comfort and information on this blog, and I hope you do, too. I am curious if you have already had an ECHO since I didn't see that in your list of "to do's." I have mitral valve regurgitation and HCOM. (HCOM diagnosed at age 59) I noticed you were on Metoprolol which is what I am taking for Mitral Valve Regurgitation. (diagnosed at 50) It makes such a difference for me. I have been on Camzyos for two and a half years and it has changed my life. I can't imagine not being on it now. I mention this in case you are ever given the possibility of Camzyos as an answer for your HCM. I was a patient at University of Washington Heart Institute and am now at MAYO clinic Scottsdale. I have received excellent care and monitoring at both hospitals.
You mention you are nervous and that seems normal for issues with our hearts. I wanted to answer your blog post because there are options for those of us with HCM and I am proof that a new drug like Camzyos can be a great option. (personally I was very nervous about open heart surgery which I haven't had to consider yet) joy!
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@whidbey I am so grateful for your words of encouragement and all this information you’re providing. I had an echo and that’s what led to the diagnosis and the star of the metropolol. My valves are fine and my cardiologist said we will determine the treatment course after the stress test, holter monitor and cardiac MRI which is due in April. I also live 2 hours away from a Mayo Clinic if I need a second opinion. I will make sure to ask all the right questions especially as I’m learning from this group. I will also ask about Camyzos at my treatment planning meeting. I look forward to sharing my experience and learning from you all. I feel comforted!