Scoliosis - Introduce yourself and meet others

Thankyou everyone for your advice! I probably should have mentioned my spinal curve starts at my pelvis and bends to the left, my pelvis is at different heights so I have one longer leg by about 2cms. And also I was told that it has a twist (outward) at the middle of my back and at my neck. They told me when I was 13 I might have trouble giving birth naturally because the opening is off Centre. This is why I was wondering if it could be causing all those problems in my pelvic region!

you are probably much worse than me, but I got kicked in the back by my sister when I was about 10 and the start of my back problems, Its only ever been noted when Ive had other xrays etc. that I have a twisting scoliosis. [about 8yrs ago] prior to that it was only reported as scoliosis and spurs on the thoracic level. Apart from seeing my physio , I basically see that my software[ muscles] keep the hardware [bones] as straight and strong as possible. Resting during bad times and pushing to the extreme during the good times. do you do swimming so that you are exercising with no weight bearing??
as for natural birth, babies are pretty squishy during birth, and unless its really narrow [ your obstetrician] will know if its going to be a planned bypass or a have a go level of difficulty

Kathy W, 58 years old, had Herrington rods when I was 15, replacement rods when I was 29 and total reconstruction when I was 49. I developed flat back syndrome and was so bent over I couldn't walk more than 10 yards without resting. Hips are full of arthritis. I was on Darvocet at night and pain patches during the day. A specialist in Louisville replaced all the hardware and reshaped the spine 9 years ago. No I'm pain free and walk 4 miles a day. It was a struggle to find the right person to help me but I found him and glad I didn't have to travel to get there. I think there is hope for others.

Hello Kathy-
I’m happy to read a post with a positive outcome. In three weeks I’m having a full reconstruction. My spine will be straightened and new hardware put in. I’m hopeful my outcome is as good as yours. I’ve put weight on as it’s become harder & harder to exercise. I’m concerned it will affect my recovery and success. I’m staying positive!
Joyce

Oh! Kathy what a wonderful story and it will give others faith and hope that they can too find someone so adaptable to these awful,things that happen to some of us thank you for telling us......Beryl

Netta here. 76 yrs. Diagnosed with severe scoliosis at age 60. My goal is to avoid surgery in my life time. Pilates 2x’s wk.

Hi my name is Cynthia and I spinal fusion in 1974 at Walter Reed Medical hospital. My rod goes from the bottom of my neck to the top of my hips. As a 14 yr old going thru pupuberty it was awful. I could not sit for an entire year because my rod extended down so far. I wore a body cast for a yr and kids at school made fun of me everyday. I am now 58 yrs old and have never had an issue with my rod or spine. No pain however watching me getting up from sitting on the floor is a sideshow. You adapt and know your limits. I have a scar the complete length of my spine and would wear a bikini in younger years. I have never been ashamed of it. I call it my battle scar. Things were so much more primitive 44 years ago but I had great military doctors

@nettamae, welcome to Connect. It sounds like the pilates must be helping since you have avoided surgery already for 16 years. How are you doing with pain and how much does the pilates help?

I have a similar situation with scoliosis but I am 55 now. I also have other problems with my neck and very low back and pelvis. Suddenly got considerably worse a few months ago. Nothing is helping the pain and flare ups. I am worried or my future.

Hello. I’m Jackie... live in Canada. Finding in my “old”age now: more and more back issues.... trying to determine if it’s from my scoliosis: or if it’s other causes etc.... and looking for ideas or proactive solutions from others going through similar experiences