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I've got SMZL. Just starting to learn about it. It seems it was caught early. Are others interested in sharing?

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Replies to "I've got SMZL. Just starting to learn about it. It seems it was caught early. Are..."

Welcome to Mayo Connect @waynepowell. While you’re waiting for other members with SMZL to pop into the discussion, I found some informational articles for you that will help introduce you to your new diagnosis. It can be beneficial to learn as much as you can but there is also a point where overloading on info can be burdensome and cause undo stress. ☺️

Mayo Clinic~Marginal zone lymphoma https://www.mayoclinic.org/diseases-conditions/marginal-zone-lymphoma/diagnosis-treatment/drc-20586125

MD Anderson~Marginal zone lymphoma
https://www.mdanderson.org/cancerwise/4-things-to-know-about-marginal-zone-lymphoma.h00-159620223.html
Lymphoma-Canada
https://www.lymphoma.ca/wp-content/uploads/2021/08/LymphomaCanada_FactSheet_SMZL_Digital.pdf
It’s great your doctor’s discovered this early. What symptoms led you to having tests? Are you currently in treatment or in a mindful observation period?

@waynepowell Hi, I got diagnosed in April 2025 with marginal zone lymphoma. My symptoms were swollen lymph nodes in front of my right ear. First they thought salivary stone- then possible mumps, after many blood tests, biopsy of that swollen lymphnode and my spleen was enlarged. I seem to get more “Raised areas” on my right forehead and my hearing was also getting muffled. I did 4 infusions in Aug. 2025 on Rituximab - the first one I had allergic reaction, they started again, slower, I got through it. I am in remission for now. I feel pretty good but I avoid crowds and sick people. I walk daily, eat organic, and thank god for another day. I am 64 years old and wonder if my years of using Round Up, ant killer, or pesticides on produce is why I got this? Anybody with this- what are your thoughts on why you got this?
Leeann