Hi, sorry this has gone on for a long time. Can see how you'd be not for more meds. Especially as it's not very known how they might affect you. Has it lessened to any degree in the 10 years at all?
I had some experience like what you described.
Mine took several years to dial down. It was also very sensitive to cold. Would cause pain. Wonder if
red light therapy might help? I get how weird it feels. Hang in there. ♡* ♡* ♡