invasive lobular carcinoma and invasive lobular in situ

@gailmarienewton I think having confidence in your oncologist & surgeon makes a huge difference! I traveled a ways to get treated at a great cancer center in Seattle, rather than my local medical center. The cancer center was less convenient but it was infinitely better for me. I followed all their advice. I was stage 1 & had lumpectomy, 5-day radiation & now take half-dose (10 mg) Tamoxifen. No regrets so far! Sending best wishes to you!

Good Morning,

I was diagnosed with ILC in January 2025. After testing, markings I started chemo for 12 weeks. Then a single mastectomy followed by a corrective surgery to remove dead skin and the expanders. I am choosing to go flat and just use breast forms. I then did 25 rounds of radiation. I am currently on Letrozole and verzensio. I did fairly well with chemo, not a lot of side effects except awful sleep. Surgery recovery was hard but okay. Radiation made me extremely tired but I just listen to my body. The medication has been the worst so far, emotional roller coaster, vomiting, confusion, hot flashes, jitters etc. It is quite the road but I am still here. My advise- prepare. I put everything I needed on a side table (drugs, water, snacks, phone, remote) for surgeries. My kids (adults) were such a resource of support (emotionally and physically). My neighbors did a meal train for me. I just put out a cooler on my front porch and they dropped of food. My partner joined me for most doctor appointments to take notes and be a second set of ears. I loaded up on streaming channels for the year. Not sure if necessary as with chemo brain you don't remember so can watch the same thing over and over (haha).

Just take it one step at a time. My care team is the best and always responsive. Eat protein and hydrate. Prayers that your journey goes smoothly!!

I'm so sorry you are dealing with this. I was diagnosed in September of 2025, lumpectomy in October, radiation (5 visits) in December and just started Letrazole in January.
I am at Mayo Phoenix and I cannot be happier with every single phase of the process. I feel great and am happy to be on maintenance at this point.
Everyone's journey is different depending on your specific diagnosis. I would recommend Mayo but if that's not a option, I would go to a cancer center. My advice is to limit how much web research you do. Forums can be great but there's a lot of misinformation.
You'll get through this, girl!!!

@panarosmith
Can I ask if you take Letrazole morning or evening? I had a single mastectomy in December and supposed to start Letrazole this week. Just trying to figure out if there is a better time of day to minimize any side effects.

@panarosmith
Can I ask if you take Letrazole morning or evening? I had a single mastectomy in December and supposed to start Letrazole this week. Just trying to figure out if there is a better time of day to minimize any side effects.

I was just informed that I can not have reconstruction because of health issues: leukemia, blood clotting issues, and Low IGg/IGm. I am in treatment for these. MD wants to take just the right breast because of fear of infection...I think she should take both. I can not see me standing in front of a mirror otherwise. Also, I am a beach person...always in a bathing suit from May through October....I can't see that I will be wearing one now. The ones that I see on line are awful. I am overwhelmed. Also, the added treatments of hormones sounds scary to me...and maybe radiation...yike! Thoughts??????