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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@chrissymc

I am sorry ot hear of the many physical, emotional, and cognitive symptoms you have experienced. You have mentioned a lot of chronic health issues, and I understand how the symptoms from each one can cause confusion when you are looking for a diagnosis and treatment.

Has your doctor contacted you yet about the results of DAT scan? This is an appropriate test to see if your brain is producing dopamine. I understand there is also a skin biopsy test that can detect PD. Not every doctor believes that it is an accurate test, though.

I was diagnosed a number of years ago, in a different way. The neurologist that I saw did other tests (MRI of the brain, EMG, etc.) to rule out other causes for my symptoms and then put me on a low dose of carbidopa/levodopa. When I started taking the meds, I had significant symptom relief. So, it was determined that I had PD. It is a rather unusual way to come about a diagnosis, but it did work well for me.

I look forward to hearing from you again as you search for a diagnosis and when you hear back about the results of the DAT scan.

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Replies to "@chrissymc I am sorry ot hear of the many physical, emotional, and cognitive symptoms you have..."

@hopeful33250 here is the response from my neurologist.

@hopeful33250 my doctor, wrote this to me today.
Hi Chris,

The scan can tell how much dopamine your brain is producing. Based on your scan, your brain is not producing enough dopamine, which is unfortunately concerning for Parkinson's disease. The Abilify blocks dopamine and makes your symptoms worse, but it does not cause an abnormal scan. Let's talk about this more at your upcoming appointment and we can go over everything at that time.

I was wondering if anyone could recommend a good basic easy to understand book about Parkinson’s disease? I could look on Amazon and pick one up. I would appreciate any of your recommendations. Thank you.

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