I’d like to meet others with ulcerative colitis

@jej55555 - This discussion was started quite a while back, as you've noted, but it's still been going more recently.

I'd like for you to meet @buddy5308204 @sherw @golfngal @cardigan @kayabbott @susanf8 @ksnak @ritabtripp @rrf67, who can tell you about their own experiences with ulcerative colitis or the experiences of a loved one.

Untreated ulcerative colitis does have a small risk of colon cancer, so it is important to get treatment and testing. I have a different type, collagenous colitis (should call it water balloon colitis) that is controlled with diet and low-dose budesonide (a designer corticosteroid with minimal side effects). Exercise is important, controlling stress is very important, and consider keeping a journal to see if stresses and/or any food groups make it worse or better. I'm sensitive to gluten (celiac) and to a lesser extent, legumes (peanuts, beans), potatoes, and NSAIDs (aspirin...)

@lisalucier I am wondering if anyone has back pain with ulcerative colitis.I also have diverticulitis.I was at the hair saloon to-day and found that I was having difficulty sitting back and felt more comfortable leaning forward.This never happened before.

@cardigan - sorry to hear about the back pain and difficulty with sitting back at the hair salon. Ouch.

@kayabbott - have you by chance had any back pain along with your ulcerative colitis?

@lisalucier I don't have ulcerative colitis. Mine is collagenous (aka microscopic) colitis. Just as messy but with no cancer risk, ulcers, or pain other than knowing where bathrooms are. @cardigan should get the back pain checked out by a doctor to rule out the cause(s). If no known, then PT can help strengthen back and pelvic muscles and therefore relieve or rid yourself of that pain.

@lisaluicier No I do not usually have back pain with the colitis.This left sided pain appeared out of nowhere and I had to rush to the toilet a half hour later.

Thank you for the advice.I am doing pelvic floor exercises at the moment and will continue to do so.