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Bone Marrow/Stem Cell Transplant informational websites
Having an allogeneic bone marrow/stem cell transplant (using donor cells) gives many of us an amazing gift of a second chance at life. There are often questions surrounding this process so we’re always looking for credible resources to help us cope with this new life we’ve been given.
There are several useful sources, besides our awesome support group here at Mayo Connect of course. I felt this would be a good discussion where members who have had a bone marrow transplant can share some of the sites that they feel have been most valuable. I’ll start in the first comment and we’ll take it from there!
Please share your favorite sites below and how did they help you?
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HugInterested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.
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National Bone Marrow Transplant Link (nbmtLINK). It’s a nonprofit organization dedicated to serving individuals before, during, and after a bone marrow or stem cell transplant.
https://www.nbmtlink.org Here’s a list of just a few of the services they provide:
Publications and resource guides such as: ~Finance Guide for Bone Marrow/Stem Cell Transplants ~Reference Guide of Helpful Organizations ~Survivorship-coping with late effects. ~Graft Vs Host Disease ~Frequently asked Questions~Pod Casts ~Lunch & Learn events (recorded sessions if you can’t make the meeting)
~Podcasts ~Blogs ~Peer support on-call program ~Find Help ~ resource list
~National Marrow Donor Program (formerly Be the Match)
https://www.nmdp.org
Besides being a global nonprofit leader in cell therapy, they help find cures and save lives for patients with blood cancers and disorders. Their website provides a comprehensive source of supportive material for bone marrow transplant patients for pre and post transplant, survivorship guides and GVHD discussions.
This from @dwolden
BMT Infonet provides support for medical professionals as well as BMT/SCT and CAR-T therapy member, with videos, resource materials, product and events listed on their site.
https://bmtinfonet.org