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@gmacd best wishes for positive outcomes with everything. My husband had an allogenic stem cell transplant in August 2024 at age 74 (he developed MDS subsequent to treatment for CLL in 2013).
There were hellish aspects but he is doing well now 17 months post transplant. Every day is a gift.
You sound like a courageous couple. Best wishes.
Replies to "@gmacd best wishes for positive outcomes with everything. My husband had an allogenic stem cell transplant..."
@dwolden that’s hopeful. We got to the hellish aspect of the Car-T last week. He got through that ok, but all the steroids have left him very weak (can’t even stand on his own) and just beat up. We’re out of the hospital now and he will start PT, and of course still a ton of transfusions to go, so hopefully better days ahead.
He had an autologous stem cell transplant 9 years ago for multiple myeloma, and now they’re thinking of giving him back the cells they kept as extras, not as a cure for the leukemia, but to make him generally better. I’m all for thinking outside the box! So, onward!!
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@dwolden thanks for the good wishes. He had a stem cell transplant (his own cells) almost 10 years ago for Multiple Myeloma, which went fairly smoothly and got the Myeloma under control. The Leukemia is a result of one of the chemo drugs he was taking to keep the Myeloma in remission, which it is. So far the Car-T is going well so far, and we have good hopes for it. The docs want to do a BMT just a few months after the Car-T. Sigh, that does seem like a lot for him to handle, but thankfully he's basically in good shape, so we'll see. I was kind of hoping we could see how the Car-T does a bit longer term. This cancer thing is quite the roller coaster ride! It's great to have this community to put things into perspective.