Connect
← Return to Has anyone been diagnosed with POEMS syndrome?
Discussion
Has anyone been diagnosed with POEMS syndrome?
Blood Cancers & Disorders | Last Active: Jun 7 8:20pm | Replies (30)Comment receiving replies
@loribmt Thanks so much Lori! Yes he has. He has started the process. The team put us to ease, they seemed to have had a solid plan. He had high dose chemo --Melphalen and underwent the transplant yesterday. Thanks so much for replying. Because POEMS is so rare it can be difficult to find support.
Replies to "@loribmt Thanks so much Lori! Yes he has. He has started the process. The team put..."
Connect
@lifeagain Thanks so much for the update on your husband! I’m so relieved for you both that he could go through with the transplant.
Just to let you know the first week or so can be a little rough with some of the side effects from the pre-conditioning chemo. He might have some nausea and extreme fatigue as his blood numbers drop. This is to be expected! But then as soon as the blood cells counts begin to rise again after engraftment, especially the neutrophils, he should pick up steam after that. So hang in there!
Please keep me updated. ☺️ And let me know if I can there’s anything I can help you with, ok?