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Moderator

Scoliosis - Introduce yourself and meet others

Posted by Justin McClanahan, Moderator @JustinMcClanahan, Apr 25, 2017

Let's talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I've noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Get comfortable in your favorite spot, grab a beverage of your choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Spine Health Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 21, 2017

Hi all,
Thank you for this respectful debate about spirituality and its place (or not) in Connect conversations. Conversations on Connect are primarily about sharing health experiences to help inform and support fellow members in their pursuit of understanding their situation, getting good medical care, making informed health decisions and, where appropriate, changing poor health behaviors. For some, spirituality is intrinsically a part of health and, as such, mention of religion is not banned on Connect. However, discussion about spirituality should not dominate a discussion about a medical issue.

Therefore, I commend the group for returning to the topic of scoliosis. Thank you.

For those of you who would like to continue to talk about faith as it applies to your health, I invite you to start a new discussion specifically on that topic, such as one member did here:
- How Spirituality Can Help Stress https://connect.mayoclinic.org/discussion/how-spirituality-can-help-stress/
Feel free to join that discussion or start a new one.

Colleen
Community Director
Mayo Clinic Connent

REPLY
johnjames | @johnjames | Jul 21, 2017

Connie, I wanted to tell you, I will be off the couple for 4-6 months, due to house repairs from the strom and medical reasons- I will be back and I really enjoy talking with all the folks. Thank you so much- John South

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Marield65. Marie | @marield65 | Jul 21, 2017
In reply to @gailfaith "@gailb, gailfaith here. I think we almost put too much faith in busy doctors, not that..." + (show)
@gailfaith

@gailb, gailfaith here. I think we almost put too much faith in busy doctors, not that that is an excuse. But I am now disabled due to a Dr.'s mistake but I don't blame him completely. Several years ago before I had one of my knees replaced, the Dr was giving me cortisone and Synvisc to hold off on the replacement as long as possible. One Friday he had injected such and I was fine for the weekend but woke up Monday morning very weak. I basically did nothing much physically except sit and read and by Friday I was back to my "normal." The next time I met with him I mentioned it and he said we'll never give you another big dose of cortisone again. Two years later I had my other knee replaced and at a post surgery follow-up, he had to aspirate the joint to remove fluid. He left that job for his resident to do, but the resident couldn't do it, so the Dr. came in and did it. Of course when I am lying down I can't see what they are doing. I was again fine for the weekend, but again on Monday morning I was very weak again and realized he had probably injected cortisone again. I figure,d since the resident started it, apparently their routine is to inject cortisone following an aspiration, so after the Dr. successfully removed the fluid, he saw the other syringe and per routine, injected it. I thought again by Friday I will be OK again, but this time the damage was permanent. So now I am fighting to stay out of wheelchair as even the Doctors at Mayo told me I can get worse but never better. So the lesson is......don't assume a doctor remembers every detail about every patient ....or even thinks you are someone else.. Several yrs ago I made an appt with another doctor in a totally different field. I had only seen him several times previously. Looking a "my" chart", he started asking me about some medications and I had no idea what he was talking about. Finally he asked my name and then he realized he had someone else's chart! So......if you have thoughts or ideas that any doctor or other professional may be thinking you are someone else, even though you both may be embarrassed ........ASK. They probably won't thank you verbally but I'm sure they will at least think about it later and be grateful for your questioning....even if they were correct in the first place. In your case, maybe he had the right person in mind, but had not updated himself with YOUR records. It doesn't cost anything to ask and it may save........who knows what!

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Are you saying that it would have been better if the issue of going off in another direction such as religion or politics etc. should have been reported rather than posting this? Marield65

REPLY
Marield65. Marie | @marield65 | Jul 21, 2017
In reply to @gailb "@marield65. I didn't want your post to go unaddressed by me, so this is my response...." + (show)
@gailb

@marield65. I didn't want your post to go unaddressed by me, so this is my response. I agree with you that in general talking about religion and/or politics can cause hard feelings. I am an atheist so any talk of religious beliefs is beyond me. Since being an atheist puts me in a minority, I have learned to not take talk of god or other deities personally. I recognize that belief in a higher power helps many people feel unconditionally loved which helps them recover. No one should ever feel put down because of their belief system.

I just don't want a discussion generally centered on religion, such as this post I am writing now. LOL Talk about politics is totally out of bounds I think, especially now. It's not relevant to illness or recovery, in my opinion. I encourage everyone to do whatever works for them in their recovery and lives. "Different strokes for different folks." is my moto. That's it for me, now back to feeling better and discussing what heps and/doesn't. Gail B Ledesma

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I,Marield65, agree. I,have too much pain at times to think about anything else. Let's get healthy and positive about doing what is medically beneficial.

REPLY
gailfaith | @gailfaith | Jul 22, 2017

I was just looking at the internet for adult (vs, childhood) exercises for Scoliosis. One site mentioned a yoga pose to even
correct .....?!?!?!?....... scoliosis, but I could not find any details. Anyone have such info . @gailfaith

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Jul 22, 2017
In reply to @gailfaith "I was just looking at the internet for adult (vs, childhood) exercises for Scoliosis. One site..." + (show)
@gailfaith

I was just looking at the internet for adult (vs, childhood) exercises for Scoliosis. One site mentioned a yoga pose to even
correct .....?!?!?!?....... scoliosis, but I could not find any details. Anyone have such info . @gailfaith

Jump to this post

I'm not coordinated enough to do yoga but I did a quick search and found a YouTube video for adults with scoliosis that may be helpful. This one is short but there are a couple others that are longer.

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Jul 22, 2017
In reply to @gailfaith "I was just looking at the internet for adult (vs, childhood) exercises for Scoliosis. One site..." + (show)
@gailfaith

I was just looking at the internet for adult (vs, childhood) exercises for Scoliosis. One site mentioned a yoga pose to even
correct .....?!?!?!?....... scoliosis, but I could not find any details. Anyone have such info . @gailfaith

Jump to this post

Hi @gailfaith, this YouTube video may be better. It's 20 minutes. If you stop it, or after it plays it will show you a list of more yoga exercises for scoliosis.

REPLY
gailfaith | @gailfaith | Jul 22, 2017

@johnbishop Thanks. I started to reply to this, but once at the bottom of this "reply" space, when suddenly your and other names appear, it appears you can no longer add anything to your reply. Is there a way to avoid that.? I lost when I had written to you. It seems you can still type, but you can no longer see what you are writing.

REPLY
4 replies
Mentor
John, Volunteer Mentor | @johnbishop | Jul 22, 2017
In reply to @gailfaith "@johnbishop Thanks. I started to reply to this, but once at the bottom of this "reply"..." + (show)
@gailfaith

@johnbishop Thanks. I started to reply to this, but once at the bottom of this "reply" space, when suddenly your and other names appear, it appears you can no longer add anything to your reply. Is there a way to avoid that.? I lost when I had written to you. It seems you can still type, but you can no longer see what you are writing.

Jump to this post

I've had similar things happen where I've lost what I was in the process of posting. I was thinking it had something to do with the web browser program I'm using which is Google Chrome on a desktop computer. I'm not sure though. Was it when you started typing a name and a name with the Connect username (@username) was showing inside the reply box but covering the bottom two lines so you couldn't see what was happening?

REPLY
gailfaith | @gailfaith | Jul 22, 2017
In reply to @gailfaith "@johnbishop Thanks. I started to reply to this, but once at the bottom of this "reply"..." + (show)
@gailfaith

@johnbishop Thanks. I started to reply to this, but once at the bottom of this "reply" space, when suddenly your and other names appear, it appears you can no longer add anything to your reply. Is there a way to avoid that.? I lost when I had written to you. It seems you can still type, but you can no longer see what you are writing.

Jump to this post

Yes. Exactly. I am using Google may be Chrome (????) also on a desktop. This is a new problem. But it was NOT when I was typing a name.......just part of my reply.

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