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Profile picture for birgitr @birgitr

@cec2 Thank you so much for your long and so beneficial educational message, for your support and encouragement 🤩. Apparently we are in the same boat with a similar diagnosis. I would love to hear regularly about how you are doing and which kind of experience you’re going through. I am still without symptoms and with the medication plan to take HU ten times a week( 500 mg). Nevertheless I will ask my doctor if he recommends taking Ropeginterferon. I will keep you updated. Best greetings from Birgit

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Replies to "@cec2 Thank you so much for your long and so beneficial educational message, for your support..."

@birgitr
Thank you and I will post again after I go back for my next checkup. I'm of course curious to find out how this medication is affecting my blood cell counts.
ET is not a common disorder but after reading many posts in several forum threads it is encouraging to know that many are living normal or fairly normal lives with ET even after decades.
Best wishes again and do keep us updated. God bless.