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Nothing has ever helped my Tinnitus: Any suggestions?

Hearing Loss | Last Active: 7 hours ago | Replies (55)

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@carol1024 Hi Carol, I'm a North Texas lady and I just read your comment here while searching online for tinnitus answers myself.
In 2010 when I had stressed out myself from driving to our vacation with my family for about 13 hours. 3 days later I headed back to Dallas, TX driving 8 more hours. When at a job fair I started breaking down crying. My nerves were literally shot. I thought I was having a nervous breakdown. I went to the ER as my sister took me and her son. And the doc there said that I was just having a stressful breakdown. So I drove back home to Louisiana 8 hrs. It was then that I started getting Bells Palsy on the right side of my face. My back of my neck really bothered me and I started getting my face droop. 6 months later it happened on the left side. Well, the right side was so initially painful that I went to a doctor and he gave me prednisone steroid to stop the pain. And believe me, it stopped it real quick. However, ha ha, and it's not funny, but that medication literally FROZE my face nerves!! Now, my right side of my face I has looked younger than my left side of my face. And when the palsy occurred on my left side, it wasn't as painful and I endured it and I didn't take medication. But! my left side did droop and I didn't get the return to normal as much. So, my check area is nearly gone, and my eye area is more droopy too on my left side.
Then, back in 2023 I had upper eyelid surgery 'because' of the droopy eye lids from the palsy.
Well, my left side STILL wants to droop more than my right eye area side. And my cheek are is very droopy. Makes me look a lot older than what I am on my left side.

Bottom line is, I did NOT have tinnitus BEFORE Bells Palsy. Period! I am convinced that this Palsy problem CAUSED this tinnitus. Palsy is triggered by "Severe stress, sleep deprivation, or illness can lower immunity, reactivating dormant viruses (like herpes simplex), leading to nerve swelling that causes the sudden facial weakness." And this 'nerve compression' caused or triggered this tinnitus to start. Because I DID NOT have this hissing at all before the Palsy!

So, this is my conclusion that this tinnitus is mainly a NERVE problem. Since Palsy, I believe that my nervous system is out of wack. Because when I had onset of the paralysis my neck and arms were affected and I felt off. Like I didn't feel normal. My hearing has never been affected at all.
I do believe that this nerve problem affects every person differently according to how their nervous system has reacted to what created the problem. Some people hear the hissing worse, and some hear different sounds.
I do not believe that it is the brain at all. Alzheimer is a disease I do believe that is caused by our environmental stressors like our horrible food chain, the modern everyday inventions we use. I notice when I use the blow dryer the sound I hear, hissing sometimes gets worse!
If there was a WAY that humans could reprogram their nervous system and revamp it, these modern day health problems would disappear.
My mother died from kidney failure. The LAST thing to deteriorate was her brain. She developed gray areas in her brain and began losing her cognitive abilities. She'd sit in her rocker and just stair out the window when there was nothing to look at. Her kidney organ affected her brain function. However, she never had tinnitus. Neither did my father. And he lost his hearing from loud sounds he used to work near and didn't protect his ears. But neither of my parents had NERVE problems at all. Nor did they develop tinnitus!
I am not a medical doctor. However, I can tell you from experience that Bells Palsy, and shingles ( I had this as well and it affects the nerves horribly with excruciating pain as well) can affect normal nervous system function. And as I said before, the nervous system is very delicate and it can be affected by our modern day stressors.
So, I live with the facial aspects not being symmetrical or normal from B.P. complications, from shingles, and from stress that still affects me. And the tinnitus is just annoying. The only time that I really notice it is at night when it is quiet. But I know why it is there. I did NOT have this before the Palsy. My nerves were mostly normal. When I was younger I used to go to rock concerts with friends. My hearing was not affected at all. I wasn't until the virus attached my nervous system that I became all out of wack like this.
I hope that there are medical professionals that look into this nervous system problem. Ten to one it is what is causing all these tinnitus problems.
People are trying to sell snake oil products, I call them, to make money off of all kinds of lies claiming to heal tinnitus. No, this problem comes from the nervous system dysfunction. I KNOW! And it is the brain that reacts to the nervous system dysfunction in different ways.
It is surely not the brain being impaired by the hissing sounds. Hogwash. Which is what these snake oil salesmen are trying to promote. And A.I. is playing a part in this garbage sales as well. It is all fake products that time again do nothing to help the nervous system I believe.
I do hope some day there is a cure for our ailing bodies that are overloaded with stress in this day and age. Look at all the celebrities who've had Bells Palsy, like Justin Beiber who had to cancel many concerts because of his facial paralysis. Too much stress can trigger this paralysis.

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Replies to "@carol1024 Hi Carol, I'm a North Texas lady and I just read your comment here while..."

@annie941 I guess we can each come to a personal conclusion for what we think is responsible for our tinnitus. There is a video on YouTube that demonstrates how to help relieve it.

You interlock your fingers behind your head below the occipital bone and tap. It actually helps somewhat.

I'm now battling another demon as of Feb 28th 2025, Stage 4 endometrial cancer. I've just had my 13th chemo treatment on Jan 29th.

Honestly, up until about 6 or 7 months ago , I did not notice the tinnitus. I guess my brain was dealing with being directed at me important things going on. It comes and goes. I run a fan at night so I have noise to listen to.

It has been proven that tinnitus is NOT an ear problem and you just reiterated that statement. It is a nerve problem that affects the neurons BETWEEN the brain and the hearing mechanism of the ear.

We each can draw our own conclusions though because there isn't a doctor around that can definitively explain where it comes from.

There are exercises though that do tend to help and give reprieve if only for a little while. Maybe it wasn't as noticeable to me for 6 months because my brain was so dedicated and in shock at the diagnosis of cancer I needed to put things in order, so to speak.

I have since had a hysterectomy, battle neuropathy, although that has gone from a 10 to a 2 with treatments for it. It does flare up with chemo. I get treatments every 3 weeks and get 6 treatments that are between 6-8 long.

Like I said though I have so many other things to redirect my brain to that I rarely hear the tinnitus at times. My balance is terrible for days after chemo so my brain has to pay attention to that area.

I also have an on body shot mechanism, Unenyca, that administers a shot 27 hours after chemo that stimulates bone marrow to produce white blood cells to help immune system fight the cancer. Because the chemo kills good cells too, the shot has to race to produce more good ones in the marrow to continue the fight. That in turn causes immense bone pain that is longer than the initial 3 or 4 days now but morphine and hydrocodone helps with that.

So for those days where I'm in pain at an 8-10, even with pain medication, having balance issues so bad that I will and have fallen several times which prompted me to get a cane, so weak I spend most time moving at a snails pace, I have barely noticed the hissing in the ears because my brain is concentrating on too many other things.

I'm just taking one day at a time now but honestly I'd much rather have the tinnitus than the uncertainty of cancer. I've also downloaded a water sounds app and will listen to rain on a tin roof with faint thunder in the background and it sounds so good. I often set it for 2 hours and will fall asleep with it on my shoulder while in my recliner.

Thank you for the reply and added info. I believe it's going to take different kinds of information from different people going through the many different types of medical problems to narrow down what's responsible for tinnitus.

I hope we don't ever give up bringing attention to this at times life altering condition that affects so many people. It is puzzling to say the least because there seems to be a variety of things that could be responsible.

Have a very blessed day and luck with your issues. Thanks again. ❤️