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I have JAK2 ET and MPN: Anyone else have these symptoms?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (111)Comment receiving replies
My husband was diagnosed with primary Myelofibrosis with JAK2 mutation last June. Has anyone looked into Benzene as a cause? My husband was a dairyman and used chemicals a lot through the years. Also, anyone experience bad circulation (cold hands and feet?)
Replies to "My husband was diagnosed with primary Myelofibrosis with JAK2 mutation last June. Has anyone looked into..."
@toste
I was also diagnosed with myelofibrosis and the JAK2 mutation about a year ago. I had extensive radiation for breast cancer in 2003 and started seeing issues with my platelet count a few years later. I don't know for sure that radiation was the cause, but it is a risk factor. I have not experienced issues with circulation. I try to take walks or go on the treadmill most days. The worst symptoms for me are extreme fatigue and itchy skin. The Jakafi medication has helped reduce the itchy skin issue.
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@toste
I am so sorry to hear about your husband's diagnosis.
Yes, many of us with blood cancers are very sensitive to cold (or heat), because the circulation of our blood has slowed. I've learned to wear extra layers of clothing when it's cool, and to minimize my activity when it's hot.
What sets off our blood cancers remains a mystery. Another frustration of dealing with this.
How is your husband's myelofibrosis being treated?