Hi @roadtecguy,
Not sure what kind of cancer you had but I had 35 rounds (7 weeks) of Photon radiation for a total of 70Gy (Gray) and 3 rounds (211mg each) for a total of 633 mgs of Cisplatin chemo for tonsil cancer back in 2008 but no surgery and I did research then and found in an England Journal of Medicine that honey could help soothe the throat pain from the mouth sores/ulcers you will get. I did shots of real honey not the ones you find in your local grocery store which most all are synthetic and don’t have the same benefits. It definitely took some of the edge off for me. This honey is often quite thick so dilution with some warm water or tea would enable it to coat and soothe the throat.
I would only use MANUKA honey (it’s from New Zealand) which you can find on Amazon that scores at least UMF 15+ and MGO rating of 500+ are considered potent enough for medicinal use- UMF ranges from 10 to 25, the higher the rating, the more potent the benefits are, and of course, the more expensive, the honey. Also, the higher the rating the thinner the honey and better tasting- I use UMF 18+ and 700+ even now for many health benefits it offers and my most recent cancer treatments I received. In addition, I heard very good things about Red Light therapy, which uses infrared light from a wand in the throat has worked well for many. Someone also said MuGard is proven to reduce mouth and throat soreness associated with oral mucositis (OM).
To help with the brutal dry mouth and after my research I tried ELECTRICAL STIMULATION ACUPUNCTURE in 2015 which ironically was just being offered at my cancer clinic for head & neck cancer patients. I was tested to get a baseline and retested after 8-10 appts. and had great results. Never needed to go back and has been a non-issue even with only one working salivatory gland, and I don't have to carry a water bottle with me either to this very day. Since then, I believe there are other additional avenues like sprays to help with that. I also slept with a Humidifier on my end table to make sure there was the most moisture possible in my bedroom to help with sleep.
I got this from my other cancer group SPOHNC and it mentioned AQUAx2 which is a clinical research study for people with moderate/ severe dry mouth (xerostomia) caused by radiation therapy purpose is to assess the efficacy and safety of "gene transfer" study drug called AAV2-hAQP1.
In addition, I didn't have this available to me but others on this support group site have mentioned “Xylimelts Stick-On Melts” you can buy off Amazon and the box of 40 was less that 10 bucks. People say they really work, and they sleep through the night. And their daytime dryness is much better also. You should research using for extended period of time effects. Also, Biotene spray is effective long time after 2 or 3 sprays! And more recently there is a Aquoral Protective Oral Spray- Dry Mouth Relief which is more than temporary relief of dry mouth. Or a prescription of Cevimeline.
God speed,
Rob
@roblem hola @roblem : tengo una fibrosis importante en la boca como consecuencia del tratamiento radioterapeutico por cáncer dé lengua posterior a la cirugía y me gustaría saber sí sabes algo para aminorar el problema o si conoces a alguien que haya practicado con alguna fórmula qué sea positiva para ayudarme en lo posible para aminorar los efectos descritos, él tratamiento lo recibí hace ahora 15 años y cada día ha ido a peor hasta el punto qué hoy apenas puedo hablar, por supuesto qué comer y beber por boca ya imposible pues me han tenido qué poner una sonda gástrica por el vientre directamente al estómago.
Sí sabes algo té agradecería me informes dé ello. Un saludo.
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