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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (1131)

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Profile picture for Patty, Volunteer Mentor @pmm

@theadosi They don’t always do a BMB. My numbers are low so I have opted not to have one. I avoid as many of the invasive procedures as I can as none are without risk.
It’s always good to ask questions though. If the purpose is to establish a baseline, my question was “is it necessary since we have gamma, kappa, the k/g ratio and m spike and can see progression in those levels?”
Some hematologist/oncologist are reluctant to even diagnose MGUS without the bone marrow biopsy in the past, but there is data to suggest that the BMB is not always necessary. I would certainly get one if my physician compelled me.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5757684/
It sounds like your doctor is not working hard to compel you. What is has he or she said about it?

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Replies to "@theadosi They don’t always do a BMB. My numbers are low so I have opted not..."

@pmm thanks Patty! How long have you had MGUS and how low are your numbers? Just wondering at what point I should maybe push for a BMB? He said he wouldn’t have even done the skeletal scan. I have to go back to see him in 6 months with labs on the day of my visit. Not sure I understand that as wouldn’t they want the lab results back before my visit?