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Breathing difficulty
My neuromuscular neurologist believes the mitrochrondia condition is affecting my diaphragm, as does my pulmonologist. I also have 7 other autoimmune diseases, and I wonder if the small fiber neuropathy or the neo paraplastic autoimmune antibody syndromes might have anything to do with the extremely debilitating shortness of breath I suffer.
Five plus minutes of activity leaves me open- mouthed, sucking in air, and physically exhausted. I recuperate rather quickly if I rest, but upon resuming activity, the same thing happens. Yes, I do push myself to complete whatever the task is, but with intermittent rests, it takes a long time.
Any suggestions for relief would be appreciated as would any insight into this problem, with my thanks.
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Hi @spenjen. May I suggest what you are describing is like many under the post covid umbrella where mitochondria function or lack of affects so much🙃 For many of us pushing thru uses up precious mitochondrial cell energy for breathing and many other body functions. Pacing and not allowing yourself to get to that hard to breath or “feel it” place allows mitochondria to continue generating energy and hopefully heal for optimum function again. My neuro PT assisted with diaphragmatic breathing exercises that also slowly, as in months/yts regained muscle throughout body to assist breathing and continue steady forward motion recovery. Hope your healthcare system offers that or similar resource for quickest healing possible 🌈
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1 ReactionI have similar symptoms and have been diagnosed with heart failure with preserved ejection fraction - HFpEF. I do have diaphragmatic issues (elevated right hemidiaphragm), but my cardiologist thinks the HFpEF is more of the culprit for the shortness of breath.
@lucyvt I too have the same congestive heart failure as you describe, but my cardiologist here at Hopkins does not believe this has anything to do with my severe breathing problems. Wow, this is so difficult!
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1 ReactionMy sense is you are mouth breathing. I learned in Yoga a technique for breathing. It requires you to rest your tongue on the pallet of your mouth. Then breath in and out softly through your nose.
I emphasize “softly”. Please try it. Then let me know.
I was diagnosed with Systemic Lupus Erythematotus in 2014. I have practiced yoga since 1990.
My best wishes 🙏