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People diagnosed with MGUS under 45

Blood Cancers & Disorders | Last Active: Feb 20 7:13pm | Replies (29)

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I was dx with MGUS in 2013, when I was around 41/42. I was also found to have low almost no iron stores after a bone marrow biopsy. Insurance would not pay for iron infusions so I was given the pill, which I could not take for very long because it upset my stomach. I have not been able to get that checked again. Also, I was last followed up in 2019 for MGUS and at that time there was a little bit of improvement. Now it's 2026 and I am trying to get checked again and my primary care doctor does not seem to know what tests need to be done. The nurse said the CBC is fine for that and mine was fine so no MGUS. I know that is not the test. I guess I am just going to find an oncologist who knows what they are doing. I am not that concerned about MGUS, more needing iron checked because I am really exhausted and just want to sleep. My B12, which was low enough to need a shot, probably before 2013, is actually too high...so it's not that! Also a few weeks ago my husband was seasoning steaks and getting ready to put it on the grill and the raw meat smelled delicious! I even ate the whole steak quickly. Normally, not so much. So maybe my iron is low? Or I'm a vampire...

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Replies to "I was dx with MGUS in 2013, when I was around 41/42. I was also found..."

@muse1
If you are only seeing a GenPrac for your MGUS I would go see a hematologist Oncologist for a second opinion. If the doctor doesn’t know what tests to run to check your numbers that’s my first red flag. That means they won’t be able to interpret your results either. Good luck and thanks for coming to this thread!