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Blood Cancers & Disorders | Last Active: Mar 3 5:40pm | Replies (1163)
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@roosa1005 hey there! My M spike was .2 G/DL. Is yours 1.1 G/L? Or 1.1 G/DL? I haven’t had a bone marrow biopsy yet but I just got diagnosed a week ago. I’m assuming they’re waiting to see what my numbers come back as in six months to see if they go up at which point perhaps they’ll order a bone marrow biopsy? I had an MRI of my back done recently as I have some lower back issues that are unrelated and they said that my bone marrow looked good. So I guess that’s good news. My free light chain ratio is .7, what about you? I agree, it is nice to have others who understand and can help ease the worry a little bit!
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@theadosi They don’t always do a BMB. My numbers are low so I have opted not to have one. I avoid as many of the invasive procedures as I can as none are without risk.
It’s always good to ask questions though. If the purpose is to establish a baseline, my question was “is it necessary since we have gamma, kappa, the k/g ratio and m spike and can see progression in those levels?”
Some hematologist/oncologist are reluctant to even diagnose MGUS without the bone marrow biopsy in the past, but there is data to suggest that the BMB is not always necessary. I would certainly get one if my physician compelled me.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5757684/
It sounds like your doctor is not working hard to compel you. What is has he or she said about it?