← Return to People diagnosed with MGUS under 45

Discussion
DMD81 avatar

People diagnosed with MGUS under 45

Blood Cancers & Disorders | Last Active: 12 hours ago | Replies (24)

Comment receiving replies
Profile picture for DMD81 @dmdinapoli81

@jrich1724
Thank you so much for sharing! I think with MGUS or SMM, getting a second opinion is always a personal thing. I suggest that if it will give you peace of mind, DO IT. Find someone though who specializes in myeloma or plasma cell neoplasms. If you had a BMB what % of involvement and the other findings also should dictate the watch protocol.
I think you are on the right steps with your diet, i think the cleaner we eat the better off we are. I am by no means where i should be and am still working to get to my goal weight. but weight loss and sugar do have a positive impact on many cancers that feed off of high sugar intake individuals. in the end, they have not shown that any particular diet will stop or slow progression.
I will say this to everyone, having MGUS diagnosed young is not an automatic meaning of progression to SMM or MM. BUT, our outcomes can possibly be better due to early detection and the newly FDA approved daratumumab and hyaluronidase-fihj for high risk SMM. which has shown to slow progression.

Jump to this post


Replies to "@jrich1724 Thank you so much for sharing! I think with MGUS or SMM, getting a second..."

@dmdinapoli81 Thanks for your thoughts on it. I had a BMB, % involvement was not listed but the report said it was a “very low level” of involvement. That was 3 years ago.