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People diagnosed with MGUS under 45

Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (24)

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@jrich1724 hey there! I’m with you. I was just diagnosed this month with MGUS, and the anxiety is real. Do you deal with any other symptoms or is it just a mental battle for you as well? Have you had any other abnormal tests or is it just the m spike you are concerned about? Was the jump just recently and they are still just going to monitor you in 6 months? I understand it’s a difficult waiting game. I wonder if numbers ever jump back down. I’m hopeful for you that this will be the case! So far I have also reduced my sugar intake and am trying to adopt more of a plant based diet. It’s hard for me to get my protein in as I usually get my protein from foods like Greek yoghurt, cottage cheese, fish and chicken. I’m leaning more towards a Mediterranean diet as I don’t want to stress so much about my diet and eliminate foods I love (I read the stress can actually be worse for your general health than what you’re eating). Honestly, I’ve also created a mantra for myself that when I get really worried I say to myself. Something I’ve never done before, but it does help to keep me from spiralling. A few sentences with the key phrase being that if I do progress to MM they will catch it early and they will treat it. The worrying is tough, but hopefully you can get some reassurance from that.

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Replies to "@jrich1724 hey there! I’m with you. I was just diagnosed this month with MGUS, and the..."

@theadosi when I was first diagnosed I had 6 month checkups for the first two years. The first 3 visits my numbers went up, the my 4th visit they came down. I suppose it is possible that they can come down but we’ll see at my next visit I guess. The anxiety is tough but I find it helps best to channel it towards productive action rather than just worry. For the most part, since the diagnosis I have gone on with my life but perhaps with a little more purpose and focus. Eating well has a purpose, spending time with loved ones has more purpose. Not to say I think I am going anywhere haha, but it puts life in a clearer perspective.
Hope you can find strength in your situation. You are definitely not alone in this condition.