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Profile picture for southwest @southwest

My parkinsons doc is a MDS. In his opinion the DAT scan results are sufficient to prove I have PD. I tried the various formulations of levodopa for up to 2 weeks, never a hint of feeling any better, but symptoms would get worse, then lessen as the levodopa wore off.

The most I can recall him saying in explanation was that some people with PD just don't get help from levodopa. Next in line would be an onapgo (apomorphine) infusion system, which looks daunting to me, but if it can get some of my life back for me, and not have too many side effects, I will use it.

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Replies to "My parkinsons doc is a MDS. In his opinion the DAT scan results are sufficient to..."

Hello @southwest,

I am sorry to hear that carbidopa/levodopa was not helpful for your symptoms. There are a lot of medications that can treat PD. Here is a listing of many of the drugs that can be used to treat PD. https://my.clevelandclinic.org/health/treatments/parkinsons-disease-medications

If you are uncomfortable with the "onapgo (apomorphine) infusion system," you might ask your movement disorder specialist if you can try one of these other medications first.

What symptoms are most bothersome to you right now?

@southwest

If I were facing this, I might get another opinion from an expert as to what might be happening. There are a number of the so-called Parkinsonism diseases which usually do not respond to levodopa. Some of them have other treatments and some don’t. Best wishes going forward.

@southwest you may be a little impatient and should try longer with your medication