@amlqueen

Only if a physician has ET does she or he know what it means. So rely on your hematologist for blood counts, but come here to learn how to live with this.

Some days are good and some are not. It's tough! And it's a safe bet that no one you know has ever even heard of ET, so this can really make you feel isolated.

Here's my experience with ET and HU. I was started at a low dose. I'm grateful to my oncologist for that, because it's probably why I've never had any side effects.

It took 8 months for HU to stop my platelet count from climbing; more than 2 years to bring the count down into the normal range.

Waiting for that to happen was frustrating. But long before the count was normal, I was getting relief from headaches. I felt much stronger too. That's what HU has done for me.

We each experience ET and HU differently. I tell you my story to give you hope!

To better days ahead.