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DiscussionPeople diagnosed with MGUS under 45
Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (24)Comment receiving replies
Replies to "Sorry I had a few typos lol my m-spike is .8 lol talk to text. SMH...."
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@dmdinapoli81 thanks again for the info! It’s really nice to have someone to talk to and helpful to have someone at a similar age going through it. Also, someone further along the line than I am. Were you as anxious as I am in the beginning? I’m hopeful I’ll relax over time, but I’m unfortunately a bit of an anxious person to begin with. I’m actually type IgG as well, but lambda. What makes you now considered SMM? They found my spike after I went to the doctor with recurrent infections and back pain. I went for a bone scan and it’s all clear. I should note I have bulging discs in my back. I had no idea that my doctor was checking my proteins, so I guess this would be an incidental finding. I am normally a healthy individual! I’ve always had low ferritin (14 on last test), and I guess it was never investigated but makes me wonder how long I’ve actually had this. Have you ever had iron infusions? My hematologist was talking about it, but I’m hesitant to mess with my blood at all right now. I also had a urine electrophoresis and that was negative. Not exactly sure what that means, but there wasn’t any protein in my urine. Hopefully that’s a good sign. Did you ever have a bone marrow biopsy? My hematologist didn’t feel it was necessary. He also said he wouldn’t have even done the bone scan, but a different specialist ordered that. When they first discovered the spike, did you have to go back for bloodwork after 6 months or did they monitor you more frequently? I really appreciate your insight and taking the time to connect < 3