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People diagnosed with MGUS under 45

Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (24)

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Sorry I had a few typos lol my m-spike is .8 lol talk to text. SMH. What brought you in to get the workup? Mine was IDA, my Iron sat was like 3 lol yikes, 5 bags later. Your hematologist sounds like they keep up with the new stuff, they know about the plant based study. Which is Awesome! I am IgG Kappa but my IgA totters high and I have never had a normal Platelet count, always high. .02 is still very low but I am not educated enough on IgM variation of MGUS. And yes mostly MGUS progression is very slow if any progression at all. Have they done a 24hr urine? A bone scan? I always tell everyone to get a baseline. I don’t know how Canada does healthcare but tell him to run everything you want a baseline, I know with immunoglobulins different types of autoimmune diseases can affect blood work results. And when it comes to my numbers going up because I track them every blood work schedule I know that they have consistently gone up so there’s really no anxiety maybe because I’ve been dealing with it for so long. But but also because I’ve done so much research over the past six years or so I feel that has put me at ease as well as the support system that I have at home with family. That is absolutely awesome that you garden and it definitely is not easy when there’s a seventh month window if we’re lucky.
I did this form thread because I wanted other young people to see they’re not alone.

Below are some numbers I log.
"M-Spike. g/dL
"Kappa Light Chain. 3.3-19.4 mg/L
"Kappa/Lambda Light ratio 0.26-1.65
"IGG. 586-1602 mg/dL
"IGA. 87-352 mg/dL
"Beta-2 Reference Interval: 0.6-2.4 mg/L
Platelets Units: x10E3/uL LDH

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Replies to "Sorry I had a few typos lol my m-spike is .8 lol talk to text. SMH...."

@dmdinapoli81 thanks again for the info! It’s really nice to have someone to talk to and helpful to have someone at a similar age going through it. Also, someone further along the line than I am. Were you as anxious as I am in the beginning? I’m hopeful I’ll relax over time, but I’m unfortunately a bit of an anxious person to begin with. I’m actually type IgG as well, but lambda. What makes you now considered SMM? They found my spike after I went to the doctor with recurrent infections and back pain. I went for a bone scan and it’s all clear. I should note I have bulging discs in my back. I had no idea that my doctor was checking my proteins, so I guess this would be an incidental finding. I am normally a healthy individual! I’ve always had low ferritin (14 on last test), and I guess it was never investigated but makes me wonder how long I’ve actually had this. Have you ever had iron infusions? My hematologist was talking about it, but I’m hesitant to mess with my blood at all right now. I also had a urine electrophoresis and that was negative. Not exactly sure what that means, but there wasn’t any protein in my urine. Hopefully that’s a good sign. Did you ever have a bone marrow biopsy? My hematologist didn’t feel it was necessary. He also said he wouldn’t have even done the bone scan, but a different specialist ordered that. When they first discovered the spike, did you have to go back for bloodwork after 6 months or did they monitor you more frequently? I really appreciate your insight and taking the time to connect < 3