← Return to Cerebellar Stroke - experience/treatment/recovery

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@steveinak

Hi Amanda,

Thanks so much for your response and thank you for moderating this group, your efforts are definitely appreciated! In answer to your question regarding stall or regression, I hit the wall I have read about at about 3 months after my stroke. I noticed that I was moving much better at about 2 months after my stroke, than at 3 months and there after. For instance, at 2 months I was bopping down the stairs at almost a normal rate, not really requiring the aid of the handrail, now, almost a year and a half later, I move slowly down the stairs and I rely on the handrail. So, that's what I am referring to when I say I have regressed somewhat. I have read a tremendous amount about strokes since this occurred, as I'm sure many of the subscriber's here have. This 3 month plateau is mentioned in many articles and books. I have read two books on stroke recovery that were very helpful, "Stroke Rebel" and "Stronger after Stroke". This period after 3 months, often referred to as the chronic period, is what I am dealing with, as is probably everyone else that is a stroke survivor. I guess one of the frustrating things about it is that I am not able or allowed to work really hard, PT, exercising, etc., because if I over do it, I pay the next couple of days, but if I sit around for a day or two, I also pay for it the following days. So, you have to walk a fine line of not doing too much, or too little. Sorry, I don't mean to whine so much about it. I know, as far as strokes go, I am fortunate, I have no speech issues, no paralysis, no vision issues, no real cognitive issues, just balance and coordination issues mostly in my left leg and left arm. Also, just an FYI, I live in Eagle River, Alaska, just outside of Anchorage, another reply I had was not sure of my location, so thought I would add that. As I said previously, I have a great PT, and if I continue to work hard, but not TOO hard, I will continue to improve, albeit slower than the first 3 months. Thanks again for letting me vent, now I must practice my uke!

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Replies to "Hi Amanda, Thanks so much for your response and thank you for moderating this group, your..."

Hi Steve @steveinak I understand. I have too felt regression. I was not keeping track in the beginning because I relied so much on the medical doctors to advise and give help. Little did I know. I thought they were the experts. I don’t know what the cause would be for the regression. Is it diet, too much or not enough activity? I did learn one thing though that survivors have an increased chance for developing glucose intolerance about 2 months into their stroke. That is because of the sudden inactivity. It is important to remain active to combat glucose intolerance. One way of doing this is to find an exercise to do for 10 minute intervals(or whatever time can be tolerated) and do as many intervals as possible throughout the day. I try to maintain exercise for at least 30-60 minutes each day. I immediately saw my symptoms improve and felt much better. Why couldn’t my doctors tell me this when I reported all my symptoms? Instead, they were baffled and gave no answers. I think we are the experts because we experience the health issues. I remember my doctors at first saying that most function will be regained within the first year. They were very vague. There is data to show a decline with physical progression in stroke survivors after so many months into their stroke. Then I started thinking. Is it the result of what their doctors advised? If they were told the very same with regaining physical function within the year, why would they continue to give it their all? They probably believed why bother and stopped. The data out there may show the decline simply because survivors stopped trying. Why is it many times we see reports on the news of people walking again after 3 years when their doctors told them they would never be able to walk? I believe the power of the mind in these cases, gives us the ability. We just need the desire and strength. After all, if we don’t try we may never know. Don’t give up! Toni