← Return to Cerebellar Stroke - experience/treatment/recovery

Discussion
Comment receiving replies
@amandajro

Hello @steveinak and welcome to Mayo Clinic Connect, an online community of member getting and giving support. From what you shared, you have been through a lot and continue to seek answers, which is great! I can also see that you are specifically seeking out information on a specialist for cerebellar strokes so wanted to offer the following resource as you begin your search.

-Stroke Care at Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/stroke/care-at-mayo-clinic/mac-20350122
I am impressed that despite your health challenges, you've also made time to take up a new hobby in the ukulele! That said, can you share how you feel you've stalled or regressed?

Jump to this post


Replies to "Hello @steveinak and welcome to Mayo Clinic Connect, an online community of member getting and giving..."

Does the term cerebellum refer to the cerebellum or to cerebral artery? Nancy5

Hi Amanda,

Thanks so much for your response and thank you for moderating this group, your efforts are definitely appreciated! In answer to your question regarding stall or regression, I hit the wall I have read about at about 3 months after my stroke. I noticed that I was moving much better at about 2 months after my stroke, than at 3 months and there after. For instance, at 2 months I was bopping down the stairs at almost a normal rate, not really requiring the aid of the handrail, now, almost a year and a half later, I move slowly down the stairs and I rely on the handrail. So, that's what I am referring to when I say I have regressed somewhat. I have read a tremendous amount about strokes since this occurred, as I'm sure many of the subscriber's here have. This 3 month plateau is mentioned in many articles and books. I have read two books on stroke recovery that were very helpful, "Stroke Rebel" and "Stronger after Stroke". This period after 3 months, often referred to as the chronic period, is what I am dealing with, as is probably everyone else that is a stroke survivor. I guess one of the frustrating things about it is that I am not able or allowed to work really hard, PT, exercising, etc., because if I over do it, I pay the next couple of days, but if I sit around for a day or two, I also pay for it the following days. So, you have to walk a fine line of not doing too much, or too little. Sorry, I don't mean to whine so much about it. I know, as far as strokes go, I am fortunate, I have no speech issues, no paralysis, no vision issues, no real cognitive issues, just balance and coordination issues mostly in my left leg and left arm. Also, just an FYI, I live in Eagle River, Alaska, just outside of Anchorage, another reply I had was not sure of my location, so thought I would add that. As I said previously, I have a great PT, and if I continue to work hard, but not TOO hard, I will continue to improve, albeit slower than the first 3 months. Thanks again for letting me vent, now I must practice my uke!