← Return to Cerebellar Stroke - experience/treatment/recovery
DiscussionCerebellar Stroke - experience/treatment/recovery
Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)Comment receiving replies
Replies to "Hi @steveinak oh so sorry to hear of your stroke. I had my AVM in September..."
Hi @avmcbellar, I too am sorry to hear of your AVM event. The unanswered questions are certainly frustrating. The brain, I guess, is just so complicated and vast and mysterious, there are just so many unknowns when it comes to stroke recovery. I am glad to hear that you are walking, with and without the aid of a cane. Mobility is certainly paramount to our well being. I did visit an ENT, and an Audiologist after my first stroke (misdiagnosed). I really don't believe I have anything terribly wrong with my vestibular system, save for the brain part. My PT has been great at quizzing me on various problems I have encountered, and whether they are vestibular or neurological. I think you are on the right track with your exercise intervals of just 10 minutes, that is key and it's great you are keeping that up. I am doing just 15 minutes at a moderate level on a stationary bike, and that's enough for me for now. It is frustrating, somewhat, for me because I lead a Spin class at a downtown gym for 8 years (2011-2018). That level of intensity is what I think I should still be able to do, guess I'm not 25 anymore, or 55 for that matter...LOL. I will also mention that I contacted a person here in Anchorage that ran a Stroke Support Group before COVID hit, and she recommended swimming to me, she said it saved her life. So, I grew up in the water in various places down in Texas, so I thought this might be the answer. I went to a local pool that had just opened up from COVID restrictions, and I did 2 laps and thought my head was going to explode. I got out of there and never went back, it was just too much head movement for my brain to deal with. If you have not looked at Brain.Rehab, you might want to give that a try. I got this website from the book, Stroke Rebel, by Linda Radestad. She and her Physical Neurologist started the website to help stroke survivors recover. It does cost $20 a month, but you can check out the website, and view the introductory video for nothing. The site, once you pay to be a subscriber, is mostly just an incredible number of videos of the Neurologist, and sometimes her too, talking about various aspects of stroke recovery. I have gotten some good information out of it, but the number of videos and the way they are organized is a bit overwhelming. You might want to check it out, just Google Brain.Rehab. If you do get a subscription and you decide it's not for you, you can cancel anytime.
Steve