@nskinner5 My team of neurologists was not by choice. After my rupture I was flown by helicopter to the hospital (Tampa General). The lead neurosurgeon was Dr. Mark S Greenberg. He is also an author on the subject. Wrote several books. I was released from his care a year later after my cerebral angiogram showed no reformation of my AVM. I was cured of the AVM but had to deal with the deficits. It has been over 4 years now. My mobility has slowly improved since my hospitalization but not enough to be working again. Take age into consideration because an older person is less likely to bounce back as a young adult would be able to. I was a person who routinely exercised and watched my diet. I never had any health issues until i.e. this...... no warning. My family was told I was not going to survive but I believe I did because I took well care of my health.
My team of doctors was in the hospital while I was in the ICU for a month. They made me feel helpless because many questions remained unanswered for a recovery strategy. I was left on my own to figure things out and that is exactly what I have been doing for the last 4 years. I have learned through trial and error what works best for me. The doctors I found to be disappointing in resolving my basic symptoms. We have to be our own health advocate and keep in mind that doctors can be a great resource of medical knowledge. I have taken advantage of that to help myself. I seem to know more than my doctors, scary. Take care of yourself. Have confidence in making the right decision once you obtain all the facts. Toni