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Cerebellar Stroke - experience/treatment/recovery
Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)Comment receiving replies
Hi @avmcbellar good to hear you are making progress. Interesting that you mention the depth perception as my neurologist thought I was making it up - . With the cup thing, when I would put it down on a table, it was like the table was much further away. The really odd thing was that if there were a pattern on the table cloth it would be way worse, the same applied to reaching for things in cupboards and closets etc. I spent two weeks just sitting there practicing the things that weren't working properly and they kind of went away. I guess the brain does re-learn, it is a slow thing though, it helps that I am stubborn
@snoopyrn, mentioned about the dizziness when spun, I used to have a similar thing, if turned my head too quickly to look at something, the room would carry on turning, it was horrible. I spent two weeks slowly turning my head left and right and I got used to it but the sensation is still there in the background. However I can't go on swings, or anything that spins or even watch things that spin anymore as it makes me feel sick. Certain flashing lights or video games that my kids play really give me motion sickness now, which never used to happen.
One really strange and new thing, is that it feels like my eyes want to do their own thing, I mean left from right, have to consciously fight it so it is suppressed, which is scary as I assume it could get at any time. I spoke to my doctor and she thought nothing of it, well thanks for that. 🙂
So two years on, I can do most things, there are little reminders, but they a million miles away compared to what it was in the first six months. The thing is there is no magical time frame which we find hard to deal with.
I agree , the best thing has been this forum and the people on it - just amazing support and real understanding.
Please keep strong.
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Hi @trkuk thank you. The recovery is a slow progress but I am patient. Nice to hear from you. I understand you live in the UK. I have never traveled there. Are you near a city? I have lived in Greece and Australia before settling to the US. So I know of the village life and city life. I prefer quiet rural life but it all depends on the needs for which is better.
Definitely the depth perception is an issue for me. That is because of my eyes not aligning. As a result of the AVM I have double vision or diplopia which makes my nausea and motion sickness worse. Do you have any visual problems? In a stroke we experience a loss of nerves which control our muscles. It sounds like the muscles of your eyes are adjusting. How about doing eye exercises to strengthen the muscles. I did that daily for 4 months recently. It helped my eyesight but made the motion sickness worse because my eyes were slowly adjusting as I focused. The shifting of images caused more motion sickness because the change was not instantaneous. The nerves were too slow. You should try it in your case. I had gone to a neuro ophthalmologist to get my diagnosis. The muscles of one eye has difficulty with the motion inwards and downwards. So I get a different image in each eye, hence the diplopia. A prism does not offer any relief in my case. I was told for the eye surgery a slight adjustment will be made for the correction. If an over adjustment is made a prism in my glass lens could offer help. Fyi, I learned about the eye exercises on my own. The ophthalmologist told me about the surgery. From my experience the medical team does not know much about the complexity of the brain so I got NO answers especially when very few people survive this ordeal. Basically I have been learning on my own through trial and error. I do not rely on physicians to help my condition. Rather I may ask them questions. I feel all the physicians want to do is push medications. We know there is always a risk as well as a benefit. I am cautious because I do not need any more health issues. I know of people who had followed a recommendation from their doctor to take a medication. Now they have more problems as a result. I will be happy to answer any questions from my experiences. Wish you strength for a better recovery. Toni