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How do you live with SVT

Heart Rhythm Conditions | Last Active: 22 hours ago | Replies (13)

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Profile picture for dyspnea @dyspnea

I’m so sorry to hear about how SVTs are disrupting your life. I was experiencing shortness of breath with minimal activity and was diagnosed with Premature Atrial Contractions 22% of the time. I had an ablation but unfortunately the errant beat emanates from an area too close to the correct path to be successfully ablated. I’ve been on Flecainide 100 mg and Carvedilol 3.125 mg twice daily with some improvement in symptoms, which for me are fatigue and shortness of breath with activity. Thankfully I am now rarely experiencing palpitations or shortness of breath when lying down.

I have had some improvement in symptoms after starting Jardiance (I also have Type 2 Diabetes) but still am experiencing PACs regularly. I have been able to find a new cardiologist and a new electrophysiologist who are more interested in finding a root cause for my symptoms and recently had a nuclear stress test and another 72 hour event monitor. The new EP has suggested that I may have better results with Tikosyn, so I am hoping to get some direction within the next week.

My experience has been gradual improvement with trying different medications (I didn’t tolerate Metoprolol either). I am grateful to be in the care of physicians who are more proactive than the previous providers. So far no AF, so I am very lucky.

Good luck to you.

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Replies to "I’m so sorry to hear about how SVTs are disrupting your life. I was experiencing shortness..."

@dyspnea
Thanks for sharing. I left off the shortness of breath at rest and the fatigue. I will be 63 in April and then retiring at 65, not 67. I want to get back to enjoying my life which mostly consist of spending time with family and going to NFL games, I'm a fanatic, lol.

@dyspnea
Thank you for sharing your experience! I am relatively new to this arena but I seem to be discovering that there are EPs who are interested in root causes and those who really truly are not. I went to one of the very top names in the field who told me to get a Kardia device, use it twice a day, and "see ya in 6 months." I try to take comfort in that...perhaps my case is so mild now that while it may be of critical importance to me, I'm not an interesting case for
Dr. Big Name. But I cannot describe my intense disappointment! Where was a discussion of what I could do to improve my situation, or at least to not make it worse? I am seeing another top EP soon and hope that I will have chosen more successfully this time. Glad to hear your new physicians are more interested I finding a root cause and I hope to be able to report the same for myself.