@avmcbellar thanks for reaching out. The bad vertigo doesn’t happen too often, but it frightens me when it dies. About two weeks ago, I had a sudden spell along with nausea that was not fun. I took a Ubrelvy because I thought a migraine might be coming on. It helped for a bit, then it all returned. I’m a nurse at the hospital where my doctors are, so went to the ER and they did a CT and said it all looked good. They gave me meclizine, which helps a little. However, I read somewhere that if it’s post-stroke related then you should ride it out so the brain can relearn signals. Who knows?? I’m just always scared it’s happening again when I feel that. I had a dural arteriovenous fistula in the left posterior fossa that became aggressive and caused mine. A surgeon at the last hospital I worked at attempted to close it in 2018 but it didn’t work. He tried to use particles. He said right away it didn’t work, and the next step was Onyx, and if that didn’t work a craniotomy. Yikes! He said I was in no danger, but hello! I believe God led me to my current job so I could be where I needed to be when this happened. The fistula was closed with one coil where the occipital artery meets the sigmoid sinus. I figure since you had an AVM in that area you might know what I’m talking about 😊. I had a diagnostic angiogram about 3 weeks after (it was my original procedure date) and the blood flow was slowly normalizing and the fistula was still closed. I’ll have another in the Spring, and I’m praying it’s all still good. I have an appointment with my headache Neuro tomorrow, and I’m going to ask to be referred to our balance center to check for inner ear disturbance and also make sure my eye tracking is ok. I was born with strabismus in my left eye, and each time someone new dies an assessment I have to tell them that. I’ve been told that I have slight nystagmus in the left when tracking, but not bad. I’m desperate to find relief form that dizzy sensation since it was my only symptom, so it scares me. No one told me that it could happen for a period of time after! The balance center can also diagnose vestibular migraines, because that’s also a possibility. My friend cuts my hair, and the other day she wasn’t thinking and spun me around on the chair! I yelled her name and she immediately knew what she did. She felt bad, she wasn’t thinking. The feeling passed though.

I’m so glad I found this forum. My friends have been awesome, but it’s good to chat with others that have similar experiences. I hope you’re doing better every day.

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