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Cerebellar Stroke - experience/treatment/recovery

Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)
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@snoopyrn

@trkuk its been a while since your post, but we have some similarities in our stories. I had a cerebellar stroke in September, passed the FAST and other testing too. In 2018 I found out I had a dural arteriovenous fistula that wasn’t supposed to cause problems, but welcome to 2020. On 9/11/2020 I went to the ER with an odd dizziness coupled with severe anxiety. It was like I wasn’t in my body. I had a clot in the jugular bulb/sigmoid sinus, but no stroke. CT, MRI, and angiogram showed good blood flow to and from the brain, so it was decided I would come back later for the fistula closure. The surgeon said he wanted to further view the images to decide which vessel was best to embolize. Five days later I was back with the same symptoms, only this time I had an infarct. My fistula was closed the next day. You’re right, the anxiety after is excruciating. I, too, was a “walkie talkie” so I wasn’t given much follow up. I was told to join support groups, but they failed to mention the resources they gave me no longer met due to COVID. I wanted to know if you experienced vertigo at all afterwards.

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Replies to "@trkuk its been a while since your post, but we have some similarities in our stories...."
trkuk | @trkuk | Nov 29, 2020

Hi @snoopym, thanks for reaching out.

Very frustrating - almost like being thrown out on to the street. Are you are in the US? Here in the UK groups are not really meeting due to COVID - in fact there were no groups in my area anyway, unless I wanted to join a group for patients in their 80's

Regarding Vertigo, it went fairly quickly - I did have some issues with depth perception on my left side and patterned objects, for example if I were to put a cup on a table, I would continue to try and put it down even though it already was, if that makes sense. This happened only with my left side for about a month. I then had a really weird thing that when I was travelling ( as a passenger ) in a car and the car stopped, for me it felt like it was still moving for a few seconds afterwards.

I found that my Neurologist was somewhat dismissive, he would sit there saying that the clots were not that bad and you could not possibly have had these issues, blooming idiot!

My memory is not what it was and my eyesight was definitely worse afterwards.

How is your vertigo, is it all the time? How are you managing?

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