← Return to Cerebellar Stroke - experience/treatment/recovery

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@avmcbellar

Hi @cerebellarstrokespouse I have had an AVM involving the cerebellum, the same part of the brain when one drinks so my balance is affected. I get dizzy with motion sickness. I have no cognitive deficits only physical. Because there are not many survivors, much is unknown. The doctors have no definitive treatment. So basically I have been learning on my own by trial and error for the last 4 years. Improvements are possible. Recovery is difficult but a very slow process. Each case is different. It seems your husband has made an amazing physical recovery. Perhaps there is therapy available to help cognitively. Would a speech therapist help with that? I would research where to get cognitive help then tell your doctor to write the order for your husband to get an evaluation. I hope this helps with your search to find answers. I wish you both well.

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Replies to "Hi @cerebellarstrokespouse I have had an AVM involving the cerebellum, the same part of the brain..."

@avmcbellar, thank you for your quick and kind reply. I hope you continue to persevere and your recovery progresses. My husband’s PCP’s nurse summarized his issues as a decline in executive function. He expresses unprovoked anger at me, has a conversational style that is a monologue, is occasionally giddy, and shows much less empathy for hurting people than before the stroke. So, in that sense, the issue is affect rather than cognition. From what I’ve read online, there is mention of a drug therapy that is at best speculative. The only other option is a psychologist. But, my husband doesn’t see a problem and hasn’t listened to input from me or his siblings. I’m hoping someone here may have insight and experience, or be aware of emerging treatments and/or the best people in this area.