← Return to Cerebellar Stroke - experience/treatment/recovery

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@acoylenp01

Hi AVMcerebellar- sounds like you and I had the same injury- I am inspired by your determination and courage- I want to fight my way back to “normalcy” - I have fallen twice and admit I am afraid now - I have no cognitive issues just extreme dizziness and imbalance- I look forward to any advice/suggestions you may have- thank you

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Replies to "Hi AVMcerebellar- sounds like you and I had the same injury- I am inspired by your..."

Hi @acoylenp01 It is a long road to recovery but I’m glad to hear you are determined to fight back. Having a positive attitude certainly helps. Yes, I had the same issues with dizziness and balance. My AVM ruptured in the cerebellum where 5 vessels were connected. I had 3 surgeries before my AVM was repaired. I too tried to find answers online but I couldn’t find any valuable information. Since my medical team had no answers I relied on myself to learn what worked for me by trial and error. At first I had no balance and needed someone with me at all times. I sat in the wheelchair for transportation. I was exhausted after 2 hours. My legs felt like lead. I tried to keep active with what little I could do physically. I gradually improved to a walker then cane. Now I can walk in the house without any device but need a cane outside for unleveled surfaces like the lawn and gravel. Be persistent with physical activity no matter how difficult the dizziness gets. It’s not easy. Along with sitting exercises, I try taking supplements. I do as much as I can tolerate. Let me know if you have any specific questions I can help you with. I did experience losing my taste. I became hypersensitive to the sweetness in foods. I had lost my appetite because all foods tasted overly sweet to me. The doctors had no idea why but after 3 years I recovered on my own. Good luck. I am glad to hear from you and remember I am happy to share what worked for me. I do not drive. With my husband’s support I continue to be positive to try different things.