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Cerebellar Stroke - experience/treatment/recovery
Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)Comment receiving replies
Hello All - I am 54, had a busy life practicing as an NP in Manhattan when I was suddenly struck (AVM hemorrhage) - the surgery team told me my cerebellum was “shot” - spent two weeks in the hospital then two weeks in rehab. I am now 6 weeks out. Ambulating with a walker, no driving. Need assistance up/down stairs and always someone with me. I can only endure one activity per day (food shopping, laundry, PT) before I am exhausted.
Grateful to be alive but sad that my whole world (and that of my family) came crashing down in 30 seconds! Will I ever be independent again? Cannot fund any info on prognosis. So happy I found this group page! Thank you
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Hi @acoylenp01, my husband had an ischemic stroke in the cerebellum 1.5years ago. He was 52 and seemingly healthy. Overnight it all changed, and I know how it feels!
It does get better. He was very down and angry for many months after the stroke. It was a turbulent time to weather through! But he was also determined to improve his condition, so he changed his eating habits, did more physical activity and challenged himself each day to retrain his brain. His ataxia is now completely gone, he cycles to and from work, swims and runs regularly. His calm, laid-back temperament is also back. The only issue remaining I would say is the insomnia... he continues to suffer from poor sleep. But he's come so far and I'm sure that little by little, it will also get better for you.
Sending you a big hug.