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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
Replies to "@amlqueen Hello, Annette! With ET, way too much of our energy is mis-directed towards platelet production...."
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@janemc
Thank you
Frustration is key
The fog is hard also. I’m a factual person and the way hematologist takes you take HU and Aspirin and live a normal life. I try but I’m not the same I have a good day and think it’s over and then the next day it’s back. I thank you for the feed back. I guess I want to hear that the things I’m feeling is just part of ET and taking ET. Then I can get through it better and deal with my symptoms and take it easy when I need too. Does it get better the longer your on HU. It’s been may be 5 months I believe