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@amlqueen

Hello, Annette! With ET, way too much of our energy is mis-directed towards platelet production. It's hard to do anything when you are so tired.

Many of us have sensitivity to cold. I've learned to wear extra layers of clothing, taking special care to keep my chest (heart) warm.

It's believed that ET's headaches come from our too-thick, platelet-heavy blood trying to pass through the tiny vessels in our heads. The headaches can be awful.

With your platelet count down to 385, you are doing great! I hope that you -- like me -- will have relief from ET's exhaustion and headaches as HU continues to work for you.

ET's tough. Please be kind to yourself.

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Replies to "@amlqueen Hello, Annette! With ET, way too much of our energy is mis-directed towards platelet production...."

@janemc
Thank you
Frustration is key
The fog is hard also. I’m a factual person and the way hematologist takes you take HU and Aspirin and live a normal life. I try but I’m not the same I have a good day and think it’s over and then the next day it’s back. I thank you for the feed back. I guess I want to hear that the things I’m feeling is just part of ET and taking ET. Then I can get through it better and deal with my symptoms and take it easy when I need too. Does it get better the longer your on HU. It’s been may be 5 months I believe