1. < Stroke & Cerebrovascular Diseases

Cerebellar Stroke - experience/treatment/recovery

Posted by strokesurvivordynamo @strokesurvivordynamo, Apr 21, 2017

I suffered a Cerebellar Stroke in Dec 2015 in my 40s and am interested in connecting with other cerebellar stroke survivors to share our experiences, testing/therapy options, struggles on the path to recovery.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

avmcbellar | @avmcbellar | Feb 14, 2020

@hopeful33250, thank you for the link. I will definitely look at the chair exercises and let you know of any positive outcomes I learn. I am currently experimenting on certain foods to help me. I also have neuropathy on the left side of my body as a result of my last surgery to repair the AVM. I was told by my neurosurgeon that it would eventually go away. Unfortunately I still continue to have it today but it has not gotten worse.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 14, 2020

@avmcbellar Maintaining your current level of functioning is a good thing and if it has not gotten worse, I'm sure you are relieved.

There are many senior citizen centers in my area that have stroke support groups. Do you have anything like that near you? I'm sure that you could be a real encourager to others in the group and you would probably learn something for yourself as well!

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1 reply
ajp2019 | @ajp2019 | Feb 14, 2020
In reply to @avmcbellar "@hopeful33250, thank you for the link. I will definitely look at the chair exercises and let..." + (show)
@avmcbellar

@hopeful33250, thank you for the link. I will definitely look at the chair exercises and let you know of any positive outcomes I learn. I am currently experimenting on certain foods to help me. I also have neuropathy on the left side of my body as a result of my last surgery to repair the AVM. I was told by my neurosurgeon that it would eventually go away. Unfortunately I still continue to have it today but it has not gotten worse.

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Check out AVM Survivors Network

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avmcbellar | @avmcbellar | Feb 14, 2020

Hi @ajp2019. Thank you, where might I find the AVM survivors network?

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avmcbellar | @avmcbellar | Feb 14, 2020
In reply to @hopeful33250 "@avmcbellar Maintaining your current level of functioning is a good thing and if it has not..." + (show)
@hopeful33250

@avmcbellar Maintaining your current level of functioning is a good thing and if it has not gotten worse, I'm sure you are relieved.

There are many senior citizen centers in my area that have stroke support groups. Do you have anything like that near you? I'm sure that you could be a real encourager to others in the group and you would probably learn something for yourself as well!

Jump to this post

@hopeful33250 Good idea. I have a local hospital very close to me about a 7 minute drive. I had outpatient physical therapy there a year ago. The hospital does boast about their stroke support group but I am not able to drive to get there. I have called them with my dilemma and became discouraged when I learned they do not offer any assistance.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 14, 2020
In reply to @avmcbellar "@hopeful33250 Good idea. I have a local hospital very close to me about a 7 minute..." + (show)
@avmcbellar

@hopeful33250 Good idea. I have a local hospital very close to me about a 7 minute drive. I had outpatient physical therapy there a year ago. The hospital does boast about their stroke support group but I am not able to drive to get there. I have called them with my dilemma and became discouraged when I learned they do not offer any assistance.

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That is too bad that they do not offer any transportation assistance, @avmcbellar.

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avmcbellar | @avmcbellar | Feb 14, 2020
In reply to @hopeful33250 "That is too bad that they do not offer any transportation assistance, @avmcbellar." + (show)
@hopeful33250

That is too bad that they do not offer any transportation assistance, @avmcbellar.

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@hopeful33250 Yes, that makes me believe that there are many more folks in the community who are stroke victims and not able to go to support groups. The support groups should offer online services to stroke victims so that they may become a part of a group or class to gain benefits. It would also be more efficient for the businesses holding the groups to offer online services.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 14, 2020
In reply to @avmcbellar "@hopeful33250 Yes, that makes me believe that there are many more folks in the community who..." + (show)
@avmcbellar

@hopeful33250 Yes, that makes me believe that there are many more folks in the community who are stroke victims and not able to go to support groups. The support groups should offer online services to stroke victims so that they may become a part of a group or class to gain benefits. It would also be more efficient for the businesses holding the groups to offer online services.

Jump to this post

Yes, @avmcbellar. Even if the support group had a call-in phone line where folks could listen and ask questions would be very helpful. I'm sure there are many patients who can't drive because of a stroke. It might be a good suggestion for your local hospital.

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