← Return to Cerebellar Stroke - experience/treatment/recovery

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@incognito

Hi all, happy to find this site.

Got cerebral stroke march-19 with three blodclots caused by a dissection in neck artery. It hit like lightning, Heavy vertigo and started to vomit in seconds. It felt like someone was pushing me really hard to the floor and couldnt move.
I am 39, In hospital they thought it was crystal sickness in the ear. I forgot everything, total blank, couldnt remember the names of my kids, the only thing i could remember was the name of my wife so I was holding on to that one! Did an MRI, was in hospital for two weeks, then rehab for two weeks before going home to my family. Felt like a million bucks at that time being home with my family. Started to work 50%. I july-19 i got a regression, got dizzy, nausea and thought it was another stroke and had multiple panic attacks for the first time in my life. Got to the hospital for a MRI. Was told that my artery was healed and no stroke. They called it post-stroke symptoms and that it was quite common. About two weeks later I was back on track, feeling good again. All felt good and started going to the gym, went to social events, dinners etc.

In november-19 during a lunch meeting I got very dizzy, couldnt stand up and a friend drove me home. Im eating thrombyl acetylsalicylic acid daily as anticoagulant so the risk for another stroke is at minimum (I guess). Anyone else eating anticoagulant, felt any sideeffects?

Got ok after a week but since then I have not recovered. I feel dizzy every day with ”small lightning attacks” i have brain cloud, i cant go to stores or any social events bc of brain flooding. It feels I have regressed 7-8 months. Im afraid this will never end. My dizziness is not rotational but sea dizzyness. Like im on a raft on a very slowly moving river. Its there when I go to bed, its there when I wake up, its there when I write this. Im starting to get depressed, its not getting better, its not getting worse, its just there all the time. One factor is that i live up north with almost no sunlight during winter, could that be a cause not feeling better?

Anyone else experienced this kind of big regression? will it ever get better?

I find it helpful walking in the forrest. Putting away the cellphone, meditate.

Im thinking about qigong or tai shi, anyone with experience?

My stroke affected my balance, sight, fine-motorics in my left hand. The sight i dont care about, the left hand is getting better playing piano so would recommend starting playing an instrument. For pushing and challange the brain fatigue and hand motorics i started building lego with my 7 yr old son. Thats was a smash hit i can tell you and great tool for rehab for me.

Other effects i noticed but was outside my direct stroke damage:
I get this warm rush through the body and then getting cold (apparently I now know the feeling of pregnancy 🙂 I kind of lost my sense of heat on my left hand (had some boiling water on it and didnt feel it much), but that sense has come back. I lost some vocabulary and have trouble bringing forward the word from the brain, ie tulip or lavendel but once I find the word it doesnt get lost again so thats fine. My math is not as good as it used to be but is improving really really slowly.

Maybe its obvious but i stay away from alcohol, last year I had a glas of wine at dinner sometimes but i believe that really counteract the rehab process so stopped all completely.
I started drinking Tea and turned it into a hobby, very relaxing so recommend that. Stopped with coffee and anything with caffeine since its not doing any good for my brain and my progress. Eating more fruits and vegetables and felt a big difference in healing process.

Sorry for the long writing and spelling.
I wish you all the best and a healthier future, all you guys are awesome!!

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Replies to "Hi all, happy to find this site. Got cerebral stroke march-19 with three blodclots caused by..."

In May of 2015 I was in a catastrophic car accident. TBI, broken neck, 6 ribs, lung injuries, multiple fractures down back and my right ankle. After months of wearing neck and back braces, many therapies, ertc. northing much got better with my post concussive persistent postural and perceptual dizziness. For five years I have been dizzy every day with periodic relief. I walk every day even though it feels like I have a bobblehead and I feel lurchy. I ride a stationary bike, do water colors, sing in choirs and play the flute and piano. Bending over to pick up something causes a rush of dizzy as does moving about too quickly. I feel an intense pressure in my head and neck when I move around using my arms and eyes. Brain scan showed no changes. Neck blood vessels appear OK.
I would love to find treatment from anywhere. I fight depression but just keep going.

Hello @incognito and welcome to Mayo Connect!

I certainly applaud you for your great attitude and willingness to help yourself. Your dietary changes, meditation, and exercise have undoubtedly been a good thing. Have you been involved in any speech therapy yet? That can be a really helpful part of post-stroke treatment.

I see that your first post was almost a month ago. How are you doing now?