Connect
← Return to AML, age 78, taking Decetabine/ Venetoclax, no transplant
Discussion
AML, age 78, taking Decetabine/ Venetoclax, no transplant
Blood Cancers & Disorders | Last Active: Jun 1 9:47am | Replies (80)Comment receiving replies
@bettersleep68 Aw, thank you so much for such a sweet message this morning! I’m grateful to be in the position to offer encouragement. I know from experience having AML is no walk on the beach but it’s being made much easier for so many patients with the newer treatments that our health care teams can provide! It’s really wonderful that you’re responding so well to your treatment! 🥰
Thank you for making my day!
Replies to "@bettersleep68 Aw, thank you so much for such a sweet message this morning! I’m grateful to..."
Connect
@loribmt
I echo the comments of others in thanking you for posting and your guidance on topics related to AML.
I am in deep remission after induction therapy (no BMT) treatment has been Venetaclax and Dacogen for 2 years. I am being transitioned to INQOVI starting June 23rd.
I am wondering if you know how others taking this chemo pill have tolerated it. I have a video call scheduled with the pharmacist to cover the side effects. With my care team I will still get blood draws every other week, MRD blood draw in April showed no evidence of my FLT3 or NPM1 mutations and MRD draw will be every 4-5 months (next one will be August) and yearly BMB in December. Last Dec BMB discovered the SF3B1 mutation. My Hem/Onc said Inqovi has shown promise in controlling the SF3B1 mutation. Any knowledge you or members reading this post can share will be greatly appreciated. Thank you again!