← Return to PV JAK2 and evolution of treatment over time

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @bracha, You’re concerned about not taking any medication right now for your PV except for the monthly phlebotomies and wondering if this is the right track to continue. Quite honestly, this is a discussion you should be having with your hematologist. Each person’s health and diagnosis is unique to them. Doctor’s will suggest treatment options depending on the needs of their patient…it’s not a ‘one size fits all’.

While taking low-dose aspirin is occasionally prescribed for patients with PV, from my understanding, if the platelet levels are low then it may not be warranted because the risk of clots forming is reduced. I had a similar situation where my hematocrit and hemoglobin were elevated but my platelet level lower. My doctor felt my risk for developing aspirin related side effects outweighed the benefit for what was a minimal clotting risk situation at that time.
Have you discussed long term options with your hematologist? Do you trust your doctor? Or would it be advisable to consider a 2nd opinion?

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Replies to "Hi @bracha, You’re concerned about not taking any medication right now for your PV except for..."

@loribmt I trust my providers, local and at UCHealth (a four-hour drive). Just wonder if there is any study of PV being affected by age, environment and patient's overall health. There's a question mark in my mind as to whether I'm doing all to circumvent a stroke or heart attack from this disorder.
Most likely my anxiety is normal for someone diagnosed with a rare disorder and anticipating the fourth quarter in life. Being 75+ has its own concerns beyond PV is suppose. . . .....