← Return to Cerebellar Stroke - experience/treatment/recovery

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@bille

I totally sympathize with you. I believe outside of motor control issues, most Doctors have very little knowledge of the impacts Cerebellar strokes have. I finally went to Johns Hopkins for a "Neuropsychological Evaluation". It was a standardized comprehensive battery of tests checking memory, logic, et al. Besides testing me, they also interviewed my husband. At the beginning they stressed that they would not be able to tell me what I lost, but rather could ascertain my neurologic health compared to my peers.

They identified a number of areas, primarily they recommended a sleep study, and treatment for depression. The sleep study was negative, but the treatment for depression has made a huge difference in the quality of my life.

The other fantastic thing coming out of this is I now have a solid and comprehensive benchmark. This testing is very standardized so in the future I can be tested against my own benchmarks. That is comforting to know.

I don't know where you live but you or your Doctor should be able to find a facility that can perform the testing on you. Not any facility can do this since it requires specific training on how to give the tests.

I hope this helps.

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Replies to "I totally sympathize with you. I believe outside of motor control issues, most Doctors have very..."

Thanks... and yes, I went through the Neuropsych eval. But I do not know the outcome yet. I am in NW Houston area. I might have ruined the test results they said because I couldn't complete in one day. I was fine when I entered the building in the morning and with the first round of testing I could hardly stand up and move...my balance was so off. I only lasted till about 2pm and I was so overwhelmed I just couldn't stay awake/finish. My neuro actually thinks it might all be due to lack of oxygen...I already have a cpap machine, but he wants me to do yet another sleep test. Mind you, my first sleep test was already done post-stroke.
Thanks so much for understanding...we'll see what they say.